Chelation Progress Summary

A common question I receive is “how was your son when you started this and how is he now?” I realize it would take someone quite a bit of time to start reading my posts from the beginning all the way to current to see this picture. So I have decided to show you a list of his original symptoms and cross out the ones we don’t have anymore.

We have to date completed 189 rounds for him.

His original symptoms:

  • toe walking all the time
  • rocking on fours
  • jumping all the time, hopping instead of walking
  • constant movement,
  • flapping, spinning
  • stimming to loud noises
  • banging on floors, walls etc
  • kicking legs and things constantly to make noise
  • fearful of loud noises
  • fear of people, no one but his own family could talk to or look at him
  • covering ears because of noise
  • clinging to me with fear in normal situations, like visitors to the home
  • would not wear clothing at all, only a diaper
  • eventually wore some clothing but tore it all off while at home
  • screaming with hair washing or combing (still dislikes hair washing but he tolerates it)
  • no hair cuts, lots of screaming
  • would not wear bandages, screamed in terror if you tried to put one on a cut
  • refusing any medicine by mouth, would gag, scream and throw up
  • refused paints, play dough or any messy play
  • fussed excessively if his hands were dirty or sticky
  • gagging if he touched certain things like playdough
  • fear of the toilet
  • toileting accidents
  • receptive language delay, didn’t understand you
  • not responding to his name
  • super hyperactive
  • lost eye contact, side ways glancing
  • self-limiting diet, ate 3 foods, everything else made him gag
  • constipation alternating with diarrhea
  • rigid, melt down if there were any changes in plans, driving different routes, unexpected guests
  • face blindness, didn’t see facial expressions of visual cues
  • lack of humor and apathy, didn’t notice people crying etc.
  • easily over stimulated in busy places
  • no impulse control at all
  • still mouthing objects at age 3 (he likes gum and does like to chew his pens)
  • no interest in playing with other kids. (this is so not him now!)
  • no pretend play
  • lining up toys by size and shape
  • spinning wheels or round objects
  • repeating words over and over again
  • watching the same video over and over for days, weeks, months
  • obsessed with heat runs, light switches, opening and closing doors etc
  • poor fine motor, in ability to print, draw, color, use scissors, feed self
  • trouble following verbal commands or finding objects in a room base on verbal command. If you send him to get something, he didn’t come back.
  • echolalia (this one took a while but it’s gone)
  • headbanging
  • biting
  • scratching
  • hitting
  • withdrawn and difficult to engage
  • did not want to be held, hugged or touched

Looking back at this list…It makes me both sad and happy. Sad that this was where he was back then. Those days were very hard on all of us. So happy that all of these things are gone. This is nothing like my son today. People always ask me if it was worth it getting up at night and doing all these rounds? Yes, it truly was worth and is still worth it.

Kids that don’t take pills

Many parents easily teach their young children to swallow pills. The sooner you can do this, the better. However, there are a subset of sensory or oral motor kids that just can’t seem to manage this task. It’s a very stressful for them and their parents.

That is our case. Every time we talk about helping my child learn this he gets very upset. It deeply stresses him because anytime he’s tried, it’s not ended well. He gags and/or vomits. He is very sensitive to tastes and smells. He gags terribly for tooth brushing or dental care.

Sometimes you have to pick your battles and you have to come to terms that your child just can’t do it right now. This doesn’t prevent you from chelating and giving supplements but you will have to be more creative than other parents.

We have so many more product formulations today than we had when I first started this and that has made it easier over the years.

I’m going to share what has worked for us. Maybe it will inspire you and help you find what will work for your child.  All in all, don’t give up, keep trying and make sure you taste the things you expect your child to take. I found out that often when he refused to take something it was because it really did taste horrible. So check!

When we started biomed he would not take a medicine syringe. He would scream, cry and vomit up whatever you gave him. The syringe was a very feared object for him and without any due cause since he did not have any previous experience with them.

How you approach kids like this is going to take some creative thinking and patience. A medicine syringe needs to be introduced slowly and in a fun way if you plan to use that. I detail the process I used in this blog post.

In the early days I was able to take one of those small juice boxes and remove some of the juice (so it doesn’t overflow when you add the vitamins). I would mix all the supplements into it and squirt it back into the box. For the life of me I have no idea how he drank this because it didn’t taste good but he did. Then one day it seemed like his tongue woke up and he refused to take it anymore. It is fairly common to have to adapt things periodically on this journey.

I moved to a variety of flavored and unflavored powders and mixed those into food and juice.

His night-time syringes didn’t last long for chelation either. From that point I moved to using miniature peanut butter cups to give chelator and a few of his supplements. Not all of them of course. He only gets 2 of these on any given day unless he is on a round.

When I use peanut butter cups for chelation, I add some extras things so he gets everything he needs. Vitamin C, magnesium, GSE, vitamin E or milk thistle all have passed the sensory taste test when mixed into the peanut butter filling with chelator. Many might be concerned about sugar on the teeth at night but I had to let go of this worry in order to chelate him. If this concerns you, you will need to work at figuring out what oral/motor issue is preventing capsule swallowing and find appropriate therapy.

What we are using now for supplements:

Bear in mind what I have listed here is just what my son has to be on right now.  These are the products I found that he will take willingly. I am sure they are many others you can use. (look for the best absorbed forms of a vitamin or mineral)

Most important!!! You don’t need all of these to chelate. My goal was to demonstrate that even with this list you can figure out a way to make it work. The essential vitamins for chelation are: vitamin C, vitamin E, magnesium and zinc. Those can all be given in powder, gummy or chewable form except vitamin E. It does not come in any of those but the gel caps are easy to puncture and mix the oil into nut butter.

Key Points to Remember:

    • Taste it! Make sure what you are asking them to take is reasonable.
    • Magnesium citrate is bitter and hard to hide.
    • Fish oil is better flavored and cold.
    • Vitamin C powder is tart, best in juice.
    • You can add calcium powder to pancakes and baked goods
    • Vitamin A, C and E are probably best not heated or cooked with.
    • Keep your probiotics at least 4 hours away from your antifungals. (everything else can be taken as it fits into the 4x a day schedule)
    • Zinc is always better with meals. It can cause nausea otherwise although I don’t find the sublinguals to do this for us.

You will find what works for your child. Just start with the basic four because sometimes once you start chelating, taking supplements becomes easier for them. Keep in mind,  zinc deficiency can be a primary reason to refuse food and supplements, so sometimes addressing this first will help.

Most of all, don’t give up! Don’t think you can’t chelate because your kid won’t take pills. It’s simply not true.

 

Using Miniature Peanut Butter Cups

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This will not be an option for everyone and it did take me time to find candy that was acceptable to me. I don’t use Reese’s because of the chemical preservatives in them. I also find the peanut butter very … Continue reading