So we had our two visits with the occupational sensory therapist to set up a program and then follow-up on how it was going. As I had talked about in the previous post on this I was a bit overwhelmed with the information from the first visit. We were supposed to go back in 2 weeks but of course they did not have an opening that soon so it was nearly a month. She originally wanted to see us in 2 weeks to check on how we were doing with the protocol in case we were having trouble.
That would have been nice to do because waiting a full month was a mess for us. We were having trouble. What happened was we did it for 3 days and my son began complaining that he didn’t like the way it felt. He said it bothered him and he began to refuse to let me do the joint compressions or deep pressure. He would only use his exercise ball, therapy putty and chew gum. (by the way I found great all natural bubble gum)
So I had to wait a month to find out what we were supposed to do now.
Turns out it’s normal for him to feel that way when you start this therapy. She hadn’t told us that before we started it but it would have been nice to know. The therapist explained it’s because he went so long without any treatment for it so now his nervous system was rebelling.
She recommended we modify the therapy to just activities he could do on his own from a list of heavy work activities. This way, no one would have to touch him.
The real hard part here is he’s a nearly 15 year old Aspie who isn’t sure he wants to take 10 minutes out every 2 hours to do this. That’s a tough sell for an older kid so in the interim he’s doing it when he can and I remind him to do it when I can. Not ideal but better than nothing and it has helped some doing it that way.
We had a few times in the past few weeks when he could touch paper, or wet his head in the shower or put water on his face. Some days are better than others depending on how much sensory diet activities he does.
With winter upon us…and lots more time indoors to focus on getting those exercises done closer to the 2 hours mark I hope we can make this work. What is promising is that I’ve seen progress…and that’s huge for us because sensory has been his worst symptom for a long time now.