A few months back I wrote about a food allergy panel that our doctor ordered to check my son for food allergies. I really should have asked a lot more questions before agreeing to spent nearly $300 for this testing. It’s expensive and poking your sensory kids finger for blood is a horrible experience for all.
In any case we trusted that the doctor had researched the validity of this test. I should have researched it. Recalling that my son’s results indicated he had elevated IgG results to several foods.We were told he needed to be off these foods for a period of time to help his body’s immune response calm down.
Four months later, with no improvement, I compared notes with another parent that also reported no change in symptoms/behavior when removing foods based on this same test. This parent ran a follow-up test nearly 6 months into the diet. The results made me questions all of it when I looked at the original and the follow-up.
So what is an IgG? It’s a “memory” antibody and from what I read IgG antibodies signal past exposure to a food antigen, not allergy to it. What? Wait….past exposure not allergy?
Of course he was exposes to eggs, whey and gluten in the past and regularly prior to any diet. He was actually already gluten free for a good 5 months before this test was done.
The other child’s follow-up testing showed that the elevated antibodies to those original foods went down which is what you’d expect if you weren’t eating them for 6 months. What we did not expect was there are now elevated antibodies to some of the foods the child has been eating to replace the ones he couldn’t have. So now instead of having elevated IgG to milk, he has it to soy because his cow milk was replaced with soy milk.
So we both looked at each and thought…so does it matter what he eats or are these antibodies just going to go up and down depending on what you eat?
That made me think, wait a minute. How valid is this test?
I am having a hard time finding valid scientific research that demonstrates that elevated IgG to foods actually indicates a food intolerance when the child has no food allergy symptoms to begin with.
We had labs drawn today. Every time we do I see a problem that is facing most of us with older children who might be either on the spectrum, developmentally delayed or have sensory issues that interfere with their response to medical and dental treatment. (trust me, sensory kids are terrible when it comes to dental or medical things and you can’t really blame the. They feel everything a hundreds times more than we do)
For my child blood work is rough. It elicits nightmares days before it is going to be done. Unfortunately this all comes from a bad experience in a hospital ER when my son was young. I’ve been told by some lab techs that they hear this story all too often and it doesn’t have to happen with the right training to work with children. I agree because it’s left him with a life long fear of needles.
I do tell each tech ahead of time that my son has anxiety with blood draws. Sometimes they listen to me and sometimes like the least time, they say stupid things like “you’re a big boy, there isn’t any need for this” while my child is hyperventilating. Then I must step in and talk to him and calm him down. Anxiety is anxiety folks regardless of how “big” one is, otherwise adults wouldn’t get it. Once you have been traumatized by something….fear is a normal expectation.
So what I wish to convey to those in the this field or the medical community is not to judge what a person can handle based on their size or age. Don’t assume. I’m there with him for a good reason during this process. He might look like he’s nearly an adult, but that doesn’t mean he doesn’t have a valid terrifying fear about the experience.
Thankfully, I can get him through blood draws but you must let me do that because I know him better than you do. I know what works. I talk to him and distract him with an in-depth conversation about something he has an interest in. Distraction is your friend on this one!
What does help:
- Distractions! Please talk about anything but needles and blood work
- Make it a point NOT to show him all tubes and the needle unless he asks
- Please go step by step verbally and tell him what you are doing before you do it and leave out terror words like “poke”, “stab”, “pain”
- Keep the tourniquet on the LEAST amount of time you have too, this is a very disturbing pain sensation for sensory kids. He says it’s worse than the needle stick.
- Use a butterfly needle, it hurts less because it’s not moving around when you change tubes.
- Please don’t assume or judge when a 14-year-old (or older) needs mom in the room. Trust me, you want me there. I know how to calm him down.
None of our jobs are easy and it is hard for medical personnel to know our kids have these issues when they might otherwise look “OK” until they are in the blood draw chair. Labs could help by keeping their ped specialized techs in the same locations instead of rotating techs. A trust of sorts get build when you have the same lab tech each time. You know what to expect!
We’ve had some great and very patient labs techs, but we don’t always get the same one. This time was not the best experience for him because he had a different tech and she put the tourniquet on and then says “I’ll be right back” and runs out of the room. Then I’m left with a panicking child that is losing control because it’s hurting a LOT. Then he’s all worked up and we haven’t even done the puncture yet or collected the blood.
I always enjoy listening to Andy speak. He has such wonderful informative interviews.
Dr. Andy Cutler: The Reality of Mercury Poisoning-Part 1
Dr. Andy Cutler: The Reality of Mercury Poisoning-Part 2
-Things to make you go hmm..?
- Pregnant women should not eat fish because of the mercury, but the CDC says they should get mercury containing flu vaccines? (25mcg of thimerosal)
- Children over age 8 can receive adult vaccine formulations which are not thimerosal-free and you won’t be told.
- Birth Hep B vaccines make no logical sense for the majority of infants considering how Hep B is contracted.
- Mercury is not just in some vaccines, it’s in fish, coal-fired power plants, CFL bulbs, dental mercury amalgam…..
- Some people are just so much more sensitive to mercury than others.
- If you’re child reacts badly to a vaccine, don’t give more….you’ve already proven your child is sensitive to them.
- Dental mercury amalgam is toxic even if you think you’re not sick from them. Get them removed safely using a specially trained dentist.
- Don’t chelate mercury unless you learn how to do so safely, using the frequent dose protocol (and you do not have mercury dental amalgam in your teeth).
- Adult booster vaccines are not mercury free. (Td, Tdap, etc) Neither are the flu vaccines. Most also contain aluminum which is a further neurotoxin.
We should stop calling autism, autism. It’s mercury poisoning……
Side note: Andy…..Thank you….my family is truly indebted to you for all your work. My son would not have come as far as he has without you.