The results of our LDN and antivirals

We had our follow-up with the doctor today to go over labs and touch base on progress after changes made in March following his lab results. This time we checked his thyroid levels, CBC with Diff, DHEA, Ferritin, Insulin, Comp Metabolic 14 Panel, thyroid antibodies.

Just to refresh what’s been going on this past few months we have been treating him for a viral and low immune system issue, hypothyroidism, anemia and nutritional deficiencies.

We were very pleased with the results because he is making progress! So that long list of antivirals and immune support he’s been taking daily since March has worked. His CBC with Diff is normal for the first time since 2011. His thyroid antibodies have come down to a normal range. Would be nice to see them even lower but from a diagnostic standpoint he no longer has “Hashimoto’s autoimmune hypothyroid”.

He is however, still hypothyroid on 1/2 grain of NatureThroid so we will be working to increase his dose slowly and repeating labs in a few months.

Ferritin came up nicely to 53 so we can cut back and phase out his iron supplement. Hopefully, he holds the levels, but if not, we might need to start it again.

DHEA is normal for his age now and ironically we never supplemented this. It isn’t really safe to use in children prior to the completion of puberty. All we did do was support his adrenal glands with adrenal cortex glandular, and give him thyroid hormone…that alone reduces the stress on the adrenal glands so they can make more DHEA!

I’m excited that our remaining supplement list is much lower now.

I also wanted to share that we have seen a significant reduction in anxiety and have been

Compounded Troches (Gummies) Image Credit: http://www.betterlivingmedical.com

able to reduce his theanine to once a day since raising thyroid meds. It is so amazing how adrenal symptoms are so often driven by low thyroid hormones and so easily corrected with a little thyroid hormone. We do need to finish out his Low dose naltrexone therapy for another 2 months though but he has no symptoms from taking it and doesn’t mind the gummies. (compounding pharmacies are a blessing, not on my wallet but eh..I’ll pick my battles!

I still have him on Citicholine for other reasons and I will continue reading about MTHFR because it my next post I talk about the problem we ran into with methylfolate.

Now we just hope these improvements stick off of the antivirals.

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Thyroid Follow Up

The gains we had with starting treatment for hypothyroidism have slowly waned. Since he is only on a 1/4 grain, which is very low….I talked to my son’s doctor about increasing the dose. She agreed to raise to 1/2 grain. This is also still conservative.

One of the indicators I had to imply he needed an increase was that he wasn’t sleeping well at night again. This was a problem that went away when we started the 1/4 grain. He couldn’t fall asleep and if he somehow made it asleep by midnight, he was up at 3am for several hours.  He is a rather tricky fellow to figure out since he doesn’t have a lot of the normal symptoms you see in hypothyroidism. Rather what he has is a lot of adrenal stress from the low thyroid and not so great labs.

We go back for our follow-up this week so we can see his newest labs on 1/2 grain and also check the progress of the LDN therapy and antivirals. (fingers crossed those antibodies are gone and that CBC normalized)

What is nice to see is that he doesn’t need all that theanine for anxiety now. He reports he isn’t having anxiety now that he’s on thyroid medicine. I’ve seen this with my other child and many others. Sometimes the drain of low thyroid hormones on the adrenal glands is tremendous. I do also suspect methylfolate or P5P as contributors to a re-appearance in anxiety so we have discontinued that temporarily to see.

Wish us luck at our appointment! Fingers crossed we can stop antivirals….maybe

Treating hypothyroidism

I’ve suspected for several years that we might be dealing with subclinical hypothyroidism. A few symptoms, blood work and family history have led me to think this needs to be addressed.

Since we are working with a functional MD that approaches children’s health from a different viewpoint, we have been addressing many things in the past 6-8 months. After discussing my son’s symptoms, his labs etc she agreed that we should try some dessicated thyroid medication.

His TSH has generally been running at 2.5 or higher since the first time anyone bothered to test it, so probably age 9.

This has never improved with adrenal support in his case which is reflective of what I see in our family. (I and my other adult child are also hypothyroid) Mercury is not the only cause for thyroid problems so in some of us despite chelation we may still need this treated.

I have an entire chapter in my book about thyroid function because it’s something I find tends to be overlooked and it’s really common these days.

Some of his symptoms that indicate his thyroid hormones are too low:

  • dandruff that isn’t responding to typical means of treatment
  • fatigue, hard to get going in the morning but can’t sleep at night
  • occasional belching, indigestion regardless of the food
  • anxiety even on adrenal support
  • gaining weight faster that what is considered expected for their age
  • brittle nails
  • brain fog
  • short-term memory issues
  • elevated TSH above 1.5 (his is 2.56)
  • free T3 that is not in the upper third of the range (*do check that the lab is using ranges for your child’s age because often they don’t. My tip-off was the range used for my son was the same one they used on my labs. A teen should have higher FT3 than someone my age. I like LabCorps Pediatric reference ranges)
  • thyroid antibodies: he has elevated TgAb (anti-thyroglobulin antibodies)  which means autoimmune hypothyroid.

Key things I’ve learned with my own thyroid issue and this is child #2 with thyroid issues.

  • When one is autoimmune hypothyroid, often the labs will be less reliable versus how you actually feel and it should be treated with thyroid medication.
  • Just because the hormone is circulating in your blood doesn’t always means it’s getting into your cells where you need it either. Especially if your immune system is destroying it or the thyroid cells. I’ve often wondered how much of the thyroid levels measured in blood are the result of destroyed cells releasing it.
  • If it quacks like a duck..it’s usually a duck so if you have the majority of symptoms, you really need to investigate this.

We have been addressing iron and vitamin D for 8 months now and his thyroid labs have not actually improved.  He’s also been on the antivirals and immune support for two and half months without any noticeable improvements. I realize Rome was not built in a day but that doesn’t mean you should have to feel lousy until and unless your deficiencies and immune issues are resolved.

So we began 1/4 grain and he reported being nauseous with a headache all day. I recognize that as adrenal fatigue. I cut his dose to 1/8 grain for a few days while I waited for the increase in adrenal cortex glandular to do its thing. Then we were able to give the 1/4 grain without any issues.

He is sleeping better. Time will tell what else improves…