Round 198 update

We just completed round 198. His dose is up to 75mg of ALA which is 1/2 mg per pound for his weight. He’s 15 now and it’s hard to believe that detox has taken us this long. Initially the time estimate was 3 years which would have been 156 rounds at 52 rounds a year. In reality we were never able to do one round every single week all year. His hair test at the 150 round mark was still pretty toxic so 150 rounds wouldn’t have done it anyway.

This past round was a bit rough for us. Rather ironic since we haven’t seen much from rounds in a few years. Nothing terrible but just little things that indicate mercury is still an issue. He he did report having a headache off and on. He was more tired as well and said he didn’t sleep well. He has issues with sleeping anyway and we were working on that with getting his thyroid medication adjusted. I increased his vitamin C and magnesium and it helped tremendously. So no more headaches. I found this round difficult because of the current status of my adrenal fatigue. I just go my labs back which confirms how I’ve been feeling so the night wakings to give doses really wore me out. Hopefully the adjustments to my adrenal support will help that.

It’s just the nature of the process that some rounds will be fantastic, and some will be harder. We’ve had more than one period of time chelating that mimicked a stall period even this far into things.  It probably isn’t the same stall period referred to in Amalgam Illness: Diagnosis and Treatment by Dr. Andrew Hall Cutler, PhD but it’s a period of months where rounds seem to do nothing. Then suddenly, one day you do a round and symptoms! That confirms that indeed it is still doing something. I’ve had several periods like this lasting at long as a year.

We are approaching 200 rounds, albeit much slower than I thought it would take us to get there but we plan to hair test a few months after reaching that. Subsequent hair testing isn’t necessary but it’s something I began doing in the beginning for curiosity. It lets me know if he still meets counting rules or not. When the test does, it gives me further motivation that the job isn’t done and I need to continue.

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Everyone has a hiccup sometimes

I thought I’d share my latest challenge to help others know that just because I’ve been doing this for a long time doesn’t mean we don’t run into challenges too.

We began round 184 this morning and this round we have a dose increase from 50mg to 60mg. My son takes his doses mixed into miniature peanut butter cups so I wasn’t sure how this was going to go with the large amount of powder for a higher dose.

He took his 6am first dose alright but he was asleep when he took it. When it was time to give him his 9am dose, he was still half asleep. (he’s a teen…they don’t like to get up in the morning)  So far so good, right?

Not exactly, he was up and had eaten breakfast before his next dose which was due at noon. I gave him his dose and he began to chew it up, then he gagged and spit it into the kitchen sink. He said it was too powdery, he gagged and it just came out. After that he felt nauseous.

Crud. I have a small window with which to try to re-dose him because in our case I was positive he had not eaten any chelator at all. We have a half hour window to get this done. I gave him a homeopathic remedy for nausea and we waited about 10 minutes.

I offered him two options: he could take it mixed into a teaspoon of juice in a syringe or we could try another peanut butter cup. I did not want to blow this round by stopping when we just began. So while he was laying down waiting for his stomach to calm down I started doing some quick thinking. How could I reduce the amount of powder in his doses…oh yeah, that’s right, I had ordered some 120mg capsules of ALA that came a few days ago.

I got the bottle out, and compared the capsule size to the 60mg I already had. They were the same size. This usually means I will end up with less powder when I split the higher milligram capsule in half. I did that and I had less powder from the 120mg capsules than the 60mg. Bingo!! Exactly what we need. Same dose, less powder.

I mixed up a new peanut butter cup using the 60mg I got from half of a 120mg capsule of ALA. Less powder mixed in much better. I added a few drop of vitamin D to make sure it was smooth and well mixed.

He was a trooper and did some slow breathing to calm down and not freak out that he might also hawk this one up. He tends to get a bit worked up if he gags on something and then he doesn’t want to try it again but he took it and drank some water. Done!

So moral here is as you get to higher doses, sometimes buying larger dose capsules than you need and splitting them up will result in less powder to work with for each dose. This is handy for those mixing chelator into juice, foods etc.

Now….back to day dreaming that my gaggy kid will someday learn to swallow capsules…sigh

Good things do happen…..

Since this road is so long and often seems to be never-ending I thought I’d post some of the good things that have been happening recently in hopes it will inspire those feeling discouraged.  We recently returned from a trip to visit some immediate family that see’s my son a few times a year.  It has been a year since we have traveled to see them and in the past travel was often filled with frustration, sensory overload and meltdowns over situations which required flexibility. I am sure most of you know exactly what I’m talking about.

If we got lost or had trouble finding a place to use the restroom, or if plans changed as they often do from moment to moment on a trip, we could always expect him to be upset.

Not this year.

This time there was no evidence of an ASD child on a trip. He did not complain about the length of the car ride but was happy to amused himself looking out the window or listening to music. He was not bothered by the sleeping arrangements, the disruption in schedule or the change in food.  Everything was totally out of the normal schedule for him and he didn’t mind at all.

The proof in the pudding was the comment “Wow, he isn’t getting upset by that stuff anymore. He’s so different from last time you came to visit.”.

When we got home, he had a doctor’s appointment with a doctor that has not seen him in a little over two years.  Halfway through this visit she turns to me mid conversation with my son and says “Wow, I don’t see any of the autism symptoms anymore, he’s so much better than last time I saw him”.   And I responded with “yes, I agree. I don’t see it either” She smiled and said “this is wonderful he’s doing so well”.

I hope she puts that in the report from our visit!

Nothing more confirmatory than a doctor reporting that they don’t see the autism symptoms you’re son had 2 years ago.