Hair Test at 178 rounds

My son’s last hair test was in 2014 so I felt it was time to repeat it and see if he still meets counting rules for mercury.  He’s done 178 rounds and unfortunately we have not been as quick in getting them done as I’d like. We had colds in the winter and then I struggling with my own adrenal issues left us way behind on getting in more rounds. However, we are back on track.

Follow up hair tests are not something you have to do but I do them for my own personal sanity. I know they are not diagnostically significant for current metal exposure if you are chelating, but I want to see how long it will take for him to stop meeting the counting rules. I also utilize the test as a guide for adrenal and thyroid function. It gives me a peak at them so I can see, if with symptoms we need to look at it more.

I’m also suspecting some adrenal and thyroid issues this time which was backed up by the hair test. He had been doing well off adrenal support for a while now but the past few weeks I’m noticing he’s refusing breakfast. He says he isn’t hungry but on further questioning he’s actually nauseous which is why he doesn’t want to eat. That is often a sign of too much adrenaline in the morning and not enough cortisol. So we have restarted adrenal support.

I’ll need to see the doctor for some thyroid tests to verify or refute those findings.

But as I suspected the test still meets counting rules. I kind of suspected that but didn’t really want to see it.  We still have lead, silver and arsenic coming out but at least the toxic metals that were high in the past are much lower. It’s also very plausible that the toxic levels of silver and arsenic are not accurate because the test meets rules. The lead would be but this is markedly improved from the past. We may at some point think about a bit of DMSA again. Well see.

While we all wasn’t to see a normal hair test, I can say that the results doesn’t really surprise me. It does give me the validation I need to continue knowing it’s still warranted. I have uploaded the test to add to our collection for those that also find interest in tracking his progress.

Hair Test

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You have a Mother what mutation?

Metabolism of folic acid. The role of Vitamin ...

Metabolism of folic acid. The role of Vitamin B 12 is seen at bottom-left. (Photo credit: Wikipedia)

Many of you may have heard about a genetic variant called methylenetetrahydrofolate reductase or  “MTHFR”  for short. While up to 70% of the population has this normal variant it is said to affect many functions in the body that can affect your health. Parents in the autism community are more familiar with this than most but it’s becoming more familiar in all areas of chronic illness. Parents in the autism community have nicknamed this pesky genetic variant “Mother FR”or the “mother-father” gene. Some have also given it as similar but foul word nick name because of the trouble it causes for their child.

Some have felt this was the cause for autism but more recent research is not demonstrating that to be true.  Rather it plays a role in autism because of how these variants affect the ability to detoxify and methylate.  Many children who have one or more of these variant gene’s do improve in symptoms when this is treated with methylation supplements.

I have a functional medicine doctor that I have been working with for over 6 years to treat my adrenal fatigue and hypothyroidism. She decided to test me for this because of my own health history and my son’s diagnosis. My son has not been tested yet but we hope to at some point. My doctor felt that if the results were positive it would help me demonstrate that this testing should be done for my child and knowing his results might help us with his biomedical management.

I got my MTHFR labs back on Friday and they were not what I expected.

I opened my email from the doctor and it said “Congratulations, you’re a mutant!”.

She has a great sense of humor!

My results said I have one copy of the C677T mutation which means I am heterozygous (meaning one copy). Those that are homozygous have two copies of the gene.  I am still learning what this means for me or for my family.

I began taking methylcobalamin several months before this to replace the B12 I was not getting in my allergy elimination diet.  Before I had done 107 rounds of chelation I could not take MB12 at all because it produced terrible symptoms for me. My conclusion for this was that I must have a methylation problems of some kind because of my mercury poisoning. So I was impressed with the progress I had made with chelation, juice cleansing and liver support.

I still don’t know for sure if my son has a copy of this gene because we have not had family testing. The potential for him to possibly have it, might explain the unusual anomalies in his previous blood testing. Several times doctors have checked his serum B12 and it has come back high. When he was 8, it was 929 in a range of 211-911 pg/ml.

I asked his pediatrician about this because there was no obvious explanation for this. I was told that “some people just have high serum B12 and don’t give him any”.

I was confused and not really appeased by the explanation. He’d never been given B12. We were not supplementing B12 or even B complex.  It was tested again a year later at age 9, and the results were 1293 in a range of 211-911. So it actually went higher and still he wasn’t on any. I was told the same thing.

All my research online didn’t reveal much about causes of high serum B12 in the absence of supplementation at that time. However, back then there wasn’t that much out there on this subject. The few occurrences I did find implicated bacterial gut overgrowth as the cause of elevated B12. However, recent articles indicate that this is the results of MTHFR. So likely he isn’t converting folic acid. (www.stopthethyroidmadness.com/mthfr)

My doctor advised me to start on 1000mcg of methylfolate per day. She did strongly warm me that it might cause bad side effects at first. If it did, I was to reduce it to 500mcg.

She’s been my functional MD for years and she knows me, so she said she expected that it was going to be rough for me because I always react the opposite of most people.

Guess what? She was correct!  No surprise…. I’m sensitive to everything anyway and why would this be any different? (Methylfolate Side Effects).

So here is what I experienced: Shortly after taking sublingual 1000mcg methylfolate I began to notice I didn’t feel quite right and I had the following symptoms:

  • shakiness
  • irritability
  • headache
  • anxious
  • fatigue
  • short of breath

So I just felt cruddy and upon referring to the MTHFR.net website regarding symptoms of methylfolate therapy I took some niacin to help reduce them which has helped but it has taken me 2 days to feel normal again.

I have not restarted methylfolate at this time. It’s going to take me a long time to forget that experience and feel brave enough to try it again at half the dose.

What I have learned out of all this has helped my son. He has always had problems with fatigue, low energy and low stamina so we began him on 500mcg of methycobalamin even though his past high serum B12 indicates he might actually need methylfolate. I am not yet ready to dive into giving him methylfolate if it might cause these same symptoms in him.

We are seeing good things with the MB12 subligual tablets. He has so much more energy and so do I!.

Want to know more? Check out MTHFR

 

 

 

 

Chelating Adults- I’ve beaten ALA

Mercury-PoisoningI have to stay that chelation for me has been more of a struggle than it has for the children. This seems to be fairly common on the forums too. Adults just have a harder time of it, not because the protocol is any different for them, but likely because they have had years more mercury exposure. Many of our children are dealing with vaccine mercury, where as adults seem to be dealing with amalgam mercury from dental fillings.

Sure, mercury is mercury…..but it seems like when you’re inhaling it for 25 years and these fillings are sitting millimeters from your brain….it just seems to gum up the works in different ways.  If that much in the photo above messed up an entire lake…..what did all those amalgams do? Most of us have endocrine dysfunction, our hormones are a mess and nothing seems to work right. We also have gut issues which seem to be similar but not the same as children with mercury poisoning or autism.

In any case, I’ve had the experience of chelating three in my house. Myself and my two children. Two of us were NT “neurotypical” and one was ASD. My observations have revealed that the NT child chelated the easiest and the fastest despite having both amalgam mercury and vaccination mercury. My ASD child chelated easy but it’s taking a lot longer. I’m the odd man…or in this case woman out. My rounds were a lot harder because my adrenal gland were simply a wreck. My thyroid was in the toilet and my gut was a disaster from numerous antibiotics.

Some other mercury folks that I have talked with over the years know of my struggles to maintain function and health so I could get my children better. It has been hard but the past few years have been much better, much easier.

It’s like all the sudden chelation has become easier in the sense ALA isn’t bothering me like it used too. This round I raised to 100mg of ALA and buckled down expecting to feel like crud. But it didn’t happen. I feel fine. Could I use a nap? Sure…anyone would if they had gotten up every 3 hours for several nights in a row.

I can’t complain otherwise, no headaches, no nothing. There is no way I could go near 100mg of ALA last year or several years ago. As I wrote about in my post “Chelating Adults: ALA was my Nemesis” I described my struggle and how long it’s taken me to get to here. It didn’t come without hard work either.

I have never given up and always kept looking for what I could do to help my body heal. That meant addressing all the things that were messed up in my body. Endocrine, gut, liver….and while this may be a co-incidence, I could take more ALA after I did the juice fasting. Here are some of the things I did in the past 2 years:

  • 10 day juice fast (reboot with Joe, followed by 9 months on a vegan diet)
  • pysllium and bentonite shakes (absorb toxins in gut from bacteria/parasites/yeast)
  • aloe water (helps heal gut)
  • taurine, milk thistle for the liver (although I found the juice fast worked much better and faster. Wouldn’t advise this though until you have done a lot of successful rounds. Definitely not for children but including greens in their diet could help)
  • Homeopathic drainage remedy for the liver
  • gemmotherapy remedy for gut/food allergies
  • castor oil packs (only did a few, very messy IMO)
  • being gluten-free for 5 years (still am today)
  • avoiding dairy, soy because they do cause symptoms for me. (lately can tolerate some dairy)

I did not do these things though until I had done over a 100 rounds of chelation and found that it no longer really made me feel better or worse when I did them. I still had other health symptoms though like hypoglycemia symptoms, chemical sensitivity, which responded well to the juice fasting because I don’t think my liver was really working well. I have later added in MB12 after testing revealed I should try some. It has helped my energy level a lot.

The main rule I stuck too was if something made me sick I listened to my body and stopped eating it or using it. If a round really knocked me down with fatigue….I took a break until I felt well for the next round. I always used Andy’s protocol for chelation even when I didn’t really want to get up at night. I had way to much mercury from my amalgams to even think about messing with some touted faster means of chelation. And sometimes I would get discouraged and think “I’m never going to get all this mercury out”, but after a short break I would go back to it again.

I’m sure I’m not “mercury free” yet, but I am certainly 100 times better than I thought I’d be if you asked me when I started out.

Notes: I would not attempt liver cleansing or juice fasting before a lot of chelation because it can cause some significant side effects. My earlier attempts at juicing caused headaches and I felt sick and could not do them. What I did was after 90 rounds I began to incorporate freshly extracted juices into my diet, having one serving per day. I did this for months. I still consume freshly extracted juices daily along with a healthy diet.