The results of our LDN and antivirals

We had our follow-up with the doctor today to go over labs and touch base on progress after changes made in March following his lab results. This time we checked his thyroid levels, CBC with Diff, DHEA, Ferritin, Insulin, Comp Metabolic 14 Panel, thyroid antibodies.

Just to refresh what’s been going on this past few months we have been treating him for a viral and low immune system issue, hypothyroidism, anemia and nutritional deficiencies.

We were very pleased with the results because he is making progress! So that long list of antivirals and immune support he’s been taking daily since March has worked. His CBC with Diff is normal for the first time since 2011. His thyroid antibodies have come down to a normal range. Would be nice to see them even lower but from a diagnostic standpoint he no longer has “Hashimoto’s autoimmune hypothyroid”.

He is however, still hypothyroid on 1/2 grain of NatureThroid so we will be working to increase his dose slowly and repeating labs in a few months.

Ferritin came up nicely to 53 so we can cut back and phase out his iron supplement. Hopefully, he holds the levels, but if not, we might need to start it again.

DHEA is normal for his age now and ironically we never supplemented this. It isn’t really safe to use in children prior to the completion of puberty. All we did do was support his adrenal glands with adrenal cortex glandular, and give him thyroid hormone…that alone reduces the stress on the adrenal glands so they can make more DHEA!

I’m excited that our remaining supplement list is much lower now.

I also wanted to share that we have seen a significant reduction in anxiety and have been

Compounded Troches (Gummies) Image Credit: http://www.betterlivingmedical.com

able to reduce his theanine to once a day since raising thyroid meds. It is so amazing how adrenal symptoms are so often driven by low thyroid hormones and so easily corrected with a little thyroid hormone. We do need to finish out his Low dose naltrexone therapy for another 2 months though but he has no symptoms from taking it and doesn’t mind the gummies. (compounding pharmacies are a blessing, not on my wallet but eh..I’ll pick my battles!

I still have him on Citicholine for other reasons and I will continue reading about MTHFR because it my next post I talk about the problem we ran into with methylfolate.

Now we just hope these improvements stick off of the antivirals.

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Antiviral Times….hi ho, here we go!

After having done so many rounds we still have some residual issues to address. We’ve gotten this year’s hair test back and he’s dumping tons of cadmium. But a major issue we’ve had consecutively for the past 3 or 4 years is a sensory integration issues.

He has many symptoms of sensory that involve selected clothing choices, food choices, avoiding odors, noises, and tactile defensiveness to certain items. He avoids paper, wood, pencils, napkins, toilet paper, tissues, and some kinds of foam or felt. There are probably a few other things I’ve forgotten.

As you can image our lives and his are modified by these sensitivities, sometimes greatly. Where he won’t wear socks in the middle of winter. Where he can’t use paper to do his school work. He manages quite well for a little person whose world is full of sensory assaults, but I’d like for him to be more comfortable.

In the past we had attempted anti-virals and usually had to abandon them due the side effects they created. We attempted the high dose Vitamin A protocol a few months ago, and we never made it above 25,000 IU of Vitamin A per day.  That wasn’t really “high dose” but it did create irritability, moodiness, defiance and a really difficult kid.

We tried to stick that out because it should go away, but after 2 1/2 weeks of a completely unmanageable child and no improvements, I went back to his normal daily dose of Vitamin A. We continued to do our rounds while I thought some more about how to go after the viruses.

I know he has a viral problem because he’s very normal acting when he has a fever.

And of course his initial negative reactions to anti-virals. This time we chose to start with olive leaf and Virastop enzymes. In addition I used some Transfer Factor and Elderberry syrup as immune support. The first two weeks or so he was irritable, and tired and a handful to deal with. But it began to subside, and then we began to slowly increase his doses.

We aren’t very high yet, but at just 2 caps of olive leaf and 2 caps of Virastop per day, I caught him using paper the other day. I asked him how his paper sensory was and he said that it wasn’t gone but it was different. While he still didn’t really care for the feel of the paper he could tolerate writing on it just a little bit. He said his sensory was a little different, not gone, but a teeny bit better.

In the past I’ve seen tiny glimpses of sensory improvement with rounds but it usually comes back off rounds. Over the years his tactile has reduced with just rounds so that he is able to wear clothing now. But his nervous system still seems disrupted by something.

The hopping, bouncing and tactile issues linger. I am trying not to get too excited just yet over this tiny change, but its hard when you’ve tried so many other things and he’s still not where he needs to be. It’s easy to fit in when you’re 3 and hopping but it’s very obvious at his age when he’s in a group of peers. At this point we’ll take any improvements we get.

I plan to continue to raise the anti-virals to a reasonable dose of a few capsules per day and hold that for 3 months. See what happens. I may change anti-virals at that point. We do have to treat for Candida while on the anti-virals, but he’s done very well and the yeast has been very minimal. Initially it kicked up and he began asking for donuts (that’s our clue) so I put him back on a sprinkle of GSE a day. And that’s taken care of it. I’m just thrilled that he took a sheet of paper and was writing codes on it for his game by himself….without anyone making him use it!!

This is stark improvement from our first attempt at antivirals which was obviously too soon. Sometimes you need enough metals out that the immune system is working and can actually help in the process of killing viruses. Not that you really “kill” them but more like control them.