Round 171 update

We are on the last day of round 171 for my son and round 111 for me. This is the first round we have used alpha lipoic acid only for my son. He has done excellent and we noticed no negative symptoms on 30mg. I wanted to see if he really needed the DMSA anymore. It doesn’t seem that he does at least not in terms of tolerating ALA. At this point  we will use it every other round until we see his next hair test. If the other toxic elements are still low, we will move to entirely ALA rounds.

I also raised my dose of alpha lipoic acid to 100mg this round and haven’t had any negative symptoms either.  Which is truly amazing considering how hard chelation has been for me until recently. (see ALA was my nemesis)

My son actually asked me to put him on a round. This is something he’s done since he was little when he felt like he needed one. In the early days of chelation he would report many great things on rounds like:

  • his brain worked better (reports he could think better)
  • he could see better (clearer vision)
  • he could hear better (less auditory processing issues)
  • he had more energy
  • he could focus and built with his legos

So many times he would ask to do a round or would want to know when the next round was coming. I have heard many parents report this same thing. Children seem to know   they feel better because of it and then want to do it.

I was just thinking that I haven’t really noticed any gains per say from chelation in a while which is expected because really he doesn’t have much in terms of symptoms to lose.

As I a writing this post my son calls to me to tell me has a surprise for me. He wants me to look out the window.

And what to my amazing grace do I see….he’s written a message to me in the snow.

As I’m tearing up I run for the camera to take a picture of it. He has written in giant letters with a stick “I Love you Mom!”.

He’s never done that before. I am amazed.

I couldn’t ask for anything more than that. I sit here with tears of joy in my eyes because my son has finally arrived into his own. He’s happy, loving, well-functioning, has friends, eats better, plays outside finally, amuses himself, is creative, inquisitive….and onward I can go. That’s always the way with chelation…just when you think it’s not doing anything….it is.

Forward, it’s now day two post round: My son says he’d like to bake something and that he loves baking (since when?…it’s more like he likes watching me bake so he can eat it). So he asks where our recipes our. I direct him to the binder on the counter. He comes back and says he found a recipe and he’d like to make peanut butter cookies. I’m tired since day two is my hit by a truck day when I chelate. I explain that I’m not really in the mood. He says that’s OK he’s going to make them himself. (What?)  I don’t interfere because I want to see what’s going to happen. Several minutes later I find he has taken out all the ingredients that the recipe calls for and the necessary bowls. He has everything on the counter ready to go. He even has two bowls in the correct sizes for the recipe. He asks me if it matters if we use unsalted butter or not? I tell him no.

No because we only buy one kind…and I personally can’t taste the difference when I bake with it. Then he asks if it matter if use smooth peanut butter because we don’t have chunky. I tell him smooth is fine.

A moment or two later I pop into the kitchen to see how he’s progressing and I find him pondering. He says “mom what does ‘cream together’ mean?”. I explain to him that it means you are going to mix/mash/smoosh all the things together. He says “I thought that’s what it meant but I wasn’t sure”.

I watch him measure out the ingredients and add them to the bowls and follow the directions for mixing. He used the electric hand blender and creamed together the wet ingredients without any help from me. He did ask me to take turns stirring when it came time to add the flour mixture to the wet mixture. He poured. I mixed. I poured. He mixed. When it was all mixed he set it in the fridge to chill as per the recipe. When it was time to roll them into balls, that was my job. He did roll one himself but the sticky texture was more than he could handle. So instead he made the fork marks and flattened them.

He put the baking sheets in the oven and set the timer. When it went off, he went in, got the oven gloves and took the cookies sheets out and put them on the stove top to cool down. After that, he got the cooling rack out and began to move the cookies to that with a spatula.

I am beyond myself. Normally, he requires A LOT of help to bake and ends up disappearing from the room before it’s half done. I don’t know what brought this on but it’s truly progress for us. For him to take on a something like this that’s normally beyond what he can complete on his own? For him to do almost all of it with little to no help?

Wow…..really speechless and proud.

That makes this round worth every second of lost sleep.



Progress, Round 60

We finished round 59 and 60. Round 59 we did a four-day stint. I was really tired. He did fine as usual. Since completing them he has taken a different air about himself, he seems happier lately, less argumentative and more relaxed. He has also been wearing clothing consistently, including underwear. That was a huge step. The underwear, he would never wear those. Now he even sleeps in them. He changes them each day without reminders too!

Last night he surprised me, many times when he seems out of sorts of seems emotionally on edge I offer him a bath. This always calms him down. He wanted a bath so I ran it for him, put in his Epsom salts and he selected the toys he wanted. I wait nearby until he is done. Normally, when he’s done I will hear him pull the tub drain and then call for me to get him out and dry him.

Last night he surprised me. For the first time ever he got himself out, dried himself off and got his sweat pants and t-shirt on, INCLUDING underwear…without my help. He never even called me!

Now some people say this is maturity, but I say its progress, because normally a six-year-old would have been doing this a long time ago. I did not have to dress my other child when she was six, nor dry her off after a bath. I did help with brushing hair of course, but I know that most children can do these things unaided. Mine could not, until now.

He also jumped two reading levels at school since round 59 during recess in February. He has now reached the level he needs to be at for June, ahead of schedule!

The small things like this are progress that we always see following a round. He’s making progress still, after three years! We gear up for another round this coming week. We are hoping to order a hair test soon and see how that compares to his other ones.

I can’t ask for more.

A lot to think about- round 58

We took advantage of our long week off, deciding we would detox for four days instead of three. We had not been able to do it in a few weeks because we kept getting colds.

We all did really well on round. I got very tired out by the 4th day though. Waking at night for three nights…uck…yeah I was tired. But we did it. I keep reminding myself to push through so we can get that wondrous clean hair test! Someday, someday we will.

I am also contemplating moving. Our area is full of toxins and that is not making this process go any quicker. Some days it’s a daunting proposition that seems like too much. Other days, I know it might be inevitable. We need clean air!

Four days of hoping that we pulled enough metals. Will this round make him stop hopping? I don’t know. Maybe not.

We are nearing a changing point for my son now, with 58 rounds down. He no longer needs a ton of supplements like he once did. We are down to a few basic ones. He still requires gut support and antifungals. We still have some food intolerance’s to handle and some viral issues to address at some point. But we have come a long way. He used to have a list of supplements that he took four times a day. I think all my energy was consumed in measuring them, and dispensing them….and buying them. I was constantly trying to figure out how to pay for the next order. I know what a pharmacy feels like. Keeping an inventory, ordering when low….etc. I got good at it. I managed with spreadsheets and VIP accounts with companies, buying groups…somehow you get there. It’s hard to believe that we need half of that now. So there is hope I may get my cupboards back someday, then I can put dishes in them like regular people!

On these four days he did express something interesting to me. He said “mom my ears aren’t working right, what therapy do we have to do to get them working right again?” This coming from a 6-year-old. He has auditory problems but they seem to have disappeared this summer with weekly rounds. He has not mentioned it since, and he has not shown symptoms of it. While I didn’t notice him having problems processing or listening on this round…he noticed something. I explained that symptoms can come and go with rounds, and that it would likely be gone when we finished. He has not mentioned it since.

I myself have seen problems in processing when chelating or if we have gone too long in between removing metals. For me, metals cause this, and removing them always removes the symptoms. This has been the case for him also. His sensory processing disorder is just about gone. Surprising, since I had a pediatrician tell me two years ago that he was born like that and there’s no cure for it. So either a divine miracle happened or the doctor is dead wrong. I’ll take the later.

On my four days of being up half the night I toy with thoughts about what we should do as a family.  Can we move out of this area? Will that help us get him metal free quicker? It’s seems it would.

The past few weeks he has taken on another sort ofstimming, or just morphed his old one I guess. He used to jump a lot on his mini trampoline. Now he has taken to using hisHoppity Ball as a primary means of transportation. He hops that thing all over the house. He even carries it up the stairs so he can hop when he gets upstairs! It is getting on my nerves now, since he even hops when he’s eating, which has resulted in some food being choked up a few times….but he can’t help it. It calms his sensory system.

1,500 People Space Hop Into The Guinness Book ...

(Photo credit: infomatique)

So hop he does. Will ever be able to sit still? I don’t know. Maybe someday.
He did not sit well at his sister’s award ceremony. He sat, on the floor in the auditorium…rather than in the seat…he climbed all over his chair.  Lucky for us we or rather other people we always sit away from people. Since most can’t tolerate what we have to tolerate. He was at least quiet during the proceedings. But he wasn’t able to sit still.

My baby bunny hopped to the bathroom and everywhere else. I think my future stock purchases should include vitamins and hoppity balls.