Light it up blue…is that enough?

It’s that time of year again when the focus on autism is based on awareness. The goal is to create awareness among the masses including those not usually affected by autism. I often wonder how many people out there not directly affected by autism take part in creating awareness? I can’t help but notice when posting things of this nature on Facebook, people only “like” it or “share it” if they have an affected child. But we are already aware. That isn’t the target here.

I guess I sort of get it because we have a cause for everything today, and it seems like there’s a different cause of the month, every month. So at some point, people just tune it out.

But that is what they are counting on. They want you to tune it out. The problem is we can’t keep tuning out the massive numbers of children showing up with autism. Look back 30 years ago, or even 15 and you will see that autism was rare. Today its common. That’s not a coincidence. How many children with autism did you know when you were a child? How many did your mother or father know with autism when they were a child?

The claim is that the increase is due to better diagnostics, but that’s an empty and silly excuse. If this were true there would be massive numbers of adults finally being diagnosed that weren’t diagnosed as children in the 1970s, 1960s, 1940s an so on. They don’t exists. These large numbers of adults displaying autistic symptoms are not there.

There is a cause and they’d like us to believe it’s genetics, but is it really? I mean look at how a genetic disorder actually occurs in a family. You will have many members with it, generational as well. And this occurrence can be traced through the lineage. It also does not increase in frequency or occurrence over generations in a family. This is not what we are seeing in autism or cancer or a lot of conditions they think are genetic.  If this were true the family tree would look more like this:

I’ve talked to a lot of people whose children have autism, and neither parent has it, and neither do the grandparents, great grandparents, aunts etc. I’m not saying there isn’t a genetic susceptibility to autoimmunity, or sensitivity to mercury, or even the ability to detoxify mercury as well as someone else. I’m saying, it isn’t genes alone. There is an environmental exposure or trigger here that was not as profound in preceding generations.

I’m saying some obvious things are being ignored or over looked when looking for a cause for autism. Ignoring obvious sources of toxins like vaccines, maternal amalgam fillings, etc.,

And what if we were to temporarily suspend the vaccine schedule until someone could prove that the vaccines don’t contribute? Or how about we take lead from Japan and postpone vaccination until after age 2. This is what they did to reduce the risks of autism and it worked!

I also think more problems lie in the separation of advocates for autism. We are all grouped into separate entities, such as parents, organizations, researchers, pro-vaxers, non-vaxers, etc, rather than banding together to share information with each other. It isn’t so much about are vaccines good or bad, it’s about what role do they play here than isn’t being looked at. Why do the package inserts state that autism is a risk of vaccination?

Certainly we do have some children who did not receive vaccines or at least their parents don’t think they did. By this I mean, if you have your baby at the hospital and it goes to the nursery for a hearing test, or some kind of routine exam, likely, your baby received a Hep B vaccine if you did not sign a waiver refusing it. The only way to insure that no such thing was done was to have never left your baby at all with anyone. I would like to hope hospitals honor the parents requests or religious exemptions but I have heard stories that this is not always what happens when they take the baby away for an exam without the parents. And if it can be verified that no such vaccinations were given, these children do have toxic hair tests, so they are getting metals from somewhere else.

I could go on really for days about this subject but what really needs to happen is that we need to have a dialogue where parents who have actually been living with autism are listened to without being written off as crazy shills.

What autism awareness should be about is telling the world that some children got shots and subsequently got sick and developed autism. And their parents want answers, and they want to spare other parents and their children a similar fate.  I think its OK to admit that maybe our vaccine program or our medical modalities are not perfect and need to be re-examined. I think change and discussion leads to better things. Of course, some organizations risk losing a lot of money if that happens.

I think “Light It Up Blue” is only a portion of what we need to do. Sure bringing awareness is huge but I think if we wanted to make a true statement as to how many are actually affected it might be more effective to gather as many families and their affected children in one location as possible. It might make the point hit home a little harder.

How about a “Million Family March” on Washington, DC?

So please when you do participate in “Light it up Blue”, remember this a huge real problem that affects millions of families and we need to be heard!

And most of us never see a dime from any of these organizations and their campaigns that want you to donate to autism. We don’t see a dime to help pay for our children’s therapies, medical expense, supplements or special diet food.

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87 round and counting

It seems that every few weeks brings us more surprises and brings us closer and closer to full recovery. Irlen as my son calls his visual disturbance has been staying away for longer and longer in between rounds. He can now go almost all week without using his reading filters or expressing problems. He says he can see fine on rounds and for 5-6 days after! We have also gotten some great gains in tactile defensiveness in that he is able to touch paper items now for a limited time. He says they bother him still but not as much as they used too. He’s not experiencing the shocking sensation he used to get when touching it. Now it’s just irritating but tolerable for short periods of time. A few rounds back I got up one morning to find him dressed in cargo pants, a polo shirt and asking me if he could brush his hair! I about fell over. First he doesn’t wear cargos. Only sweats, saying that other types of pants are too scratchy. Second….usually no polo shirts, doesn’t like collars on his neck and thirdly he’d never ask to brush his hair. He hates having it brushed. We certainly encouraged him and expressed our happiness that he had gotten dressed, combed his hair and looked very handsome in those dress clothes.

As we progress through rounds his sensory issues fluctuate. Sometimes he will sleep in sweats, other times not. But overall we are seeing a reduction in sensory issue altogether.

His yeast has been gone for over a month now. Even on rounds! He no longer needs anti-fungals at all. About two weeks ago I noticed a change in his behavior. He was very irritable, moody, and defiant and just all around difficult. Not like himself at all. Thinking he had bacteria now that the yeast was gone, we put him Culturelle. Within four hours of his first dose he was already more pleasant. He’s been on it for a week now and he’s back to himself again! He’s doing so well with rounds every week and making a lot of progress that it’s been worth the loss of sleep… I am glad we have been able to concentrate so much on getting the rounds in each week so we can make some huge headway.

We do still have some issues. Sometimes he doesn’t’ understand what you mean. He hears you perfectly but he doesn’t get it until you explain it better. Other times he does not get social cues like when to stop a conversation…but any of the little issues he has left are not noticeable to anyone we meet in public. There are still sensory concerns with riding in the car too long, needing to hop but nothing like how he was. I don’t want to give anyone the impression that we just did a few rounds and bam! The kid was fixed. This has been a long road. It will be four years in April. But four years of persistence no matter how tired I got. Giving the supplements, doing the rounds and watching him change, progress and reclaim the little boy he was supposed to be. I can hardly wait to see what this year’s hair test will show! I still wait for the normal hair test. I don’t think it will be this year though…..but closer would be nice. But if it’s not, I’m grateful for all we have gotten so far and we will push on!