Using Miniature Peanut Butter Cups

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This will not be an option for everyone and it did take me time to find candy that was acceptable to me. I don’t use Reese’s because of the chemical preservatives in them. I also find the peanut butter very … Continue reading

How I got my sensory kids to take a medicine syringe

My son had a lot of problems with oral motor and sensory. This made teaching him to take pills impossible. When we began biomed he was only 3 years old and self-limited his food based on smell, taste and texture. Supplementing and preparing for chelation took some work on my part to get him comfortable taking things by mouth.

At this point in time he absolutely refused to take anything from a medicine syringe. Even trying to resulted in a screaming terrified tantrum of fear for him. It is not uncommon for ASD children to have a lot of anxiety and fear, and they may refuse any attempts to give them supplements from a medicine syringe.

However, in order to chelate him I had to find a way to help him overcome this fear. In my desperation to chelate my very metal toxic child, I invented a game to help build trust and dispel his fears about the syringe.

I began by letting him play with them as if they were one of his toys. It squirted air, it was fun to push and pull and he chewed on everything at that age anyway. So some mouthing of the object did occur. All without me suggesting anything. All of which moved him closer to being comfortable with it.

From there we showed him that is was a squirter. It could squirt water into the sink and what fun it was to aim it at a bowl of suds.

Then I began asking him to squirt mommy a drink of water. He thought that was powerful and lots of fun. Eventually he let me give him a squirt of water. All in fun, with smiles and laughs and no stress about the process. I trusted him to guide me on his comfort level.

If he refused to take water or juice, I let him. I’d just have him give me the water instead. It helped that he felt some control over what would happen to his body.

Then our game progressed to putting his favorite juice in the syringe for mommy to taste. We played this game for several weeks until he was comfortably taking juice squirts from the syringe.

Mine did not go quietly those first few rounds with night doses and that led me to make the story. That led me to make him a social story. (you can download it here) It’s a brief story in very simple terms with images to help them understand what is going on and what to expect.

I figured he did not understand why I was putting this in mouth in the middle of the night. Which was probably why he was refusing and upset. Most of us are not used to be woken at 3am to drink anything.  He did learn to sleep through night doses pretty quickly thankfully.  You can also do a few “dry runs” at night with just juice and no chelator to help them adjust.

A method of all three and patience will help your little one on their way to accepting supplements from a medicine dispenser and taking their night doses.

 

What does the timing for a round look like?

Some of the questions I receive about chelation are based on how to set up the dose times and how long do you have to chelate? At first this all seems rather daunting and complex but I promise, by the time you have done 10 rounds it becomes like brushing your teeth….well almost….if you add in getting up at night.

I’ve always heard that “it’s so much work getting up a night, how do you do it?” Well, my response has always been “it isn’t any different from when I had to get up to feed my newborn son. He needed to be fed, I got up. Well he needs this medicine…so I get up. It isn’t glamorous but it is working.

Over the years our timing schedule has changed depending on things like school schedule or chelator used but what is consistent is that we must dose by the half-life and the rounds cannot be shorter than 64 hours.

Since all rounds at some point should use ALA (or you’re never going to get mercury out of the brain) the following are based on 3 hour dosing schedules for using ALA (you’d give DMSA at the same time if using both):

This works for kids not in school or on a three-day break from school:

  • Day One: 6am, 9am, 12 noon, 3pm, 6pm, 9pm, 12 mid,
  • Day Two: 4am, 8am, 11am, 2pm, 5pm, 8pm, 11pm
  • Day Three: 3am, 6am, 9am, 12 noon, 3pm, 6pm, 9pm, midnight. -66 hours
    • *if I end at 11:00pm it’s 65 hours which is also acceptable.
  • I do modify this sometimes to look like this:
    • Day One:  6am, 9am, 12 noon, 3pm, 9pm, 12 mid
    • Day Two: 4am, 8am, 11am, 2pm, 5pm, 8pm, 10pm, 12 mid
    • Day Three: 4am, 8am, 11am, 2pm, 5pm, 8pm, 11pm
      • *the purpose being I need those 4 hours sleep slots.

Kids in school aren’t able to take doses during the school day and would chelate Friday after school through Monday morning. It is never advised to involve school in this process for many reasons: doses get forgotten, people misunderstand what this is and call CPS on you…I’m not kidding, I’ve seen this happen. Just skip the hassle, take care of this on your own.

  • Friday: 4pm, 7pm, 10pm
  • Saturday: 2am, 6am, 9am, 12 noon, 3pm, 6pm, 9pm, 12 mid
  • Sunday: 4am, 8am, 11am, 2pm, 5pm, 8pm, 11pm
  • Monday: 3am, 6am, 8-9 am.
    • *These rounds are usually 63-64 hours.

If your round is not this long you need to figure out if you can pick your child up from school on Friday or drop them off Monday morning to add in some extra time.  Sometimes avoiding the bus ride will give you the extra hour or two you need. If you have children in school you also need to take advantage of every 3 day weekend, holiday break and the entire summer break to do more rounds on a three-day schedule. This will be easier because you only get up two nights, not three.

The times I posted are going to vary by family depending on what time you plan to give the first dose. The key though is you have to maintain the 3 hours daytime dosing. You can do that as night as well but it isn’t necessary because when your child sleeps, their metabolism is slower. They will not process the chelator as fast.

You finish your 3 days/two nights and take at least 4 days off before the next one. Most can manage a round a week. There is room to do longer rounds but this often harder on adrenal function for all involved. Just remember as many hours as you chelated, you need to take at least that many off.

An important key to remember is that doses cannot be given late by more than one hour….use two alarms!!  Keep track of who in the home is dosing. this avoid confusion with forgotten or extra doses.  Yes this happens, more than you think it does. Make a schedule, print it out, post it in plain sight. Check off the doses as they are given. Or use a method similar to this.

We are all human so do the best you can but don’t beat yourself up if you can’t spend the entire summer doing a round every week. I’d advise it if you can, but I get it if you can’t. The key to remember is this process takes a long time. The average is 100-300 rounds and some need more than that.So you really do want to do as many as you can feasibly manage.

Kids grow up, they don’t want to take supplements or chelators anymore. They get jobs and go to college….and at some point compliance may become an issue. Ideally you want chelation done before those things happen. Plus…the sooner you get the mercury out, the better they will be in the long run.

The exception here is going to be for those that started this process when their children were already older. They will have fewer choices and fitting rounds in regardless of busy teen schedules will become a priority. Just like adults that work, have a family to take care etc but they still manage to chelate. (case in point..me!)

Don’t get discouraged…don’t get overwhelmed…just take ONE round at a time.

Mantra: 3 days on, 4 days off, 64 hours minimum, don’t be late by more than an hour!