Chelation Progress Summary

A common question I receive is “how was your son when you started this and how is he now?” I realize it would take someone quite a bit of time to start reading my posts from the beginning all the way to current to see this picture. So I have decided to show you a list of his original symptoms and cross out the ones we don’t have anymore.

We have to date completed 189 rounds for him.

His original symptoms:

  • toe walking all the time
  • rocking on fours
  • jumping all the time, hopping instead of walking
  • constant movement,
  • flapping, spinning
  • stimming to loud noises
  • banging on floors, walls etc
  • kicking legs and things constantly to make noise
  • fearful of loud noises
  • fear of people, no one but his own family could talk to or look at him
  • covering ears because of noise
  • clinging to me with fear in normal situations, like visitors to the home
  • would not wear clothing at all, only a diaper
  • eventually wore some clothing but tore it all off while at home
  • screaming with hair washing or combing (still dislikes hair washing but he tolerates it)
  • no hair cuts, lots of screaming
  • would not wear bandages, screamed in terror if you tried to put one on a cut
  • refusing any medicine by mouth, would gag, scream and throw up
  • refused paints, play dough or any messy play
  • fussed excessively if his hands were dirty or sticky
  • gagging if he touched certain things like playdough
  • fear of the toilet
  • toileting accidents
  • receptive language delay, didn’t understand you
  • not responding to his name
  • super hyperactive
  • lost eye contact, side ways glancing
  • self-limiting diet, ate 3 foods, everything else made him gag
  • constipation alternating with diarrhea
  • rigid, melt down if there were any changes in plans, driving different routes, unexpected guests
  • face blindness, didn’t see facial expressions of visual cues
  • lack of humor and apathy, didn’t notice people crying etc.
  • easily over stimulated in busy places
  • no impulse control at all
  • still mouthing objects at age 3 (he likes gum and does like to chew his pens)
  • no interest in playing with other kids. (this is so not him now!)
  • no pretend play
  • lining up toys by size and shape
  • spinning wheels or round objects
  • repeating words over and over again
  • watching the same video over and over for days, weeks, months
  • obsessed with heat runs, light switches, opening and closing doors etc
  • poor fine motor, in ability to print, draw, color, use scissors, feed self
  • trouble following verbal commands or finding objects in a room base on verbal command. If you send him to get something, he didn’t come back.
  • echolalia (this one took a while but it’s gone)
  • headbanging
  • biting
  • scratching
  • hitting
  • withdrawn and difficult to engage
  • did not want to be held, hugged or touched

Looking back at this list…It makes me both sad and happy. Sad that this was where he was back then. Those days were very hard on all of us. So happy that all of these things are gone. This is nothing like my son today. People always ask me if it was worth it getting up at night and doing all these rounds? Yes, it truly was worth and is still worth it.

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How I got my sensory kids to take a medicine syringe

My son had a lot of problems with oral motor and sensory. This made teaching him to take pills impossible. When we began biomed he was only 3 years old and self-limited his food based on smell, taste and texture. Supplementing and preparing for chelation took some work on my part to get him comfortable taking things by mouth.

At this point in time he absolutely refused to take anything from a medicine syringe. Even trying to resulted in a screaming terrified tantrum of fear for him. It is not uncommon for ASD children to have a lot of anxiety and fear, and they may refuse any attempts to give them supplements from a medicine syringe.

However, in order to chelate him I had to find a way to help him overcome this fear. In my desperation to chelate my very metal toxic child, I invented a game to help build trust and dispel his fears about the syringe.

I began by letting him play with them as if they were one of his toys. It squirted air, it was fun to push and pull and he chewed on everything at that age anyway. So some mouthing of the object did occur. All without me suggesting anything. All of which moved him closer to being comfortable with it.

From there we showed him that is was a squirter. It could squirt water into the sink and what fun it was to aim it at a bowl of suds.

Then I began asking him to squirt mommy a drink of water. He thought that was powerful and lots of fun. Eventually he let me give him a squirt of water. All in fun, with smiles and laughs and no stress about the process. I trusted him to guide me on his comfort level.

If he refused to take water or juice, I let him. I’d just have him give me the water instead. It helped that he felt some control over what would happen to his body.

Then our game progressed to putting his favorite juice in the syringe for mommy to taste. We played this game for several weeks until he was comfortably taking juice squirts from the syringe.

Mine did not go quietly those first few rounds with night doses and that led me to make the story. That led me to make him a social story. (you can download it here) It’s a brief story in very simple terms with images to help them understand what is going on and what to expect.

I figured he did not understand why I was putting this in mouth in the middle of the night. Which was probably why he was refusing and upset. Most of us are not used to be woken at 3am to drink anything.  He did learn to sleep through night doses pretty quickly thankfully.  You can also do a few “dry runs” at night with just juice and no chelator to help them adjust.

A method of all three and patience will help your little one on their way to accepting supplements from a medicine dispenser and taking their night doses.