Good things do happen…..

Since this road is so long and often seems to be never-ending I thought I’d post some of the good things that have been happening recently in hopes it will inspire those feeling discouraged.  We recently returned from a trip to visit some immediate family that see’s my son a few times a year.  It has been a year since we have traveled to see them and in the past travel was often filled with frustration, sensory overload and meltdowns over situations which required flexibility. I am sure most of you know exactly what I’m talking about.

If we got lost or had trouble finding a place to use the restroom, or if plans changed as they often do from moment to moment on a trip, we could always expect him to be upset.

Not this year.

This time there was no evidence of an ASD child on a trip. He did not complain about the length of the car ride but was happy to amused himself looking out the window or listening to music. He was not bothered by the sleeping arrangements, the disruption in schedule or the change in food.  Everything was totally out of the normal schedule for him and he didn’t mind at all.

The proof in the pudding was the comment “Wow, he isn’t getting upset by that stuff anymore. He’s so different from last time you came to visit.”.

When we got home, he had a doctor’s appointment with a doctor that has not seen him in a little over two years.  Halfway through this visit she turns to me mid conversation with my son and says “Wow, I don’t see any of the autism symptoms anymore, he’s so much better than last time I saw him”.   And I responded with “yes, I agree. I don’t see it either” She smiled and said “this is wonderful he’s doing so well”.

I hope she puts that in the report from our visit!

Nothing more confirmatory than a doctor reporting that they don’t see the autism symptoms you’re son had 2 years ago.

As you progress, supplements decrease

Packing Supplements

Back in the early days Copyright The Edge of Autism 2010

I was looking back in our recovery journal and I had kept yearly lists of the supplements my children were taking at each year during our chelation journey.  I think it demonstrates progress in regaining health when you look at the list of supplements we need today.

The point being that as you get the toxic metals out, the body heals and works better. So you don’ t need so many supplements anymore.

This post is in no way indicative that anyone needs to take all of these or should take them all. This was the protocol as it was in 2006. Supplements were given differently than they are today, although all of them has a use in dealing with mercury poisoning.  Today the recommendation for children is far less than this but some of these have utility in treating the gut, adrenals, etc.

This was his supplement regimen at age 3 1/2 years.

  • Multivitamin/Mineral for ASD- 1 tsp per day
  • Probiotic-1-2 capsules at bedtime
  • Vitamin A-8,000 IU 1x per day
  • Vitamin E-400 IU 1x per day
  • Vitamin C-1800mg per day divided into 4 doses
  • B Complex-15mg 3x a day
  • Calcium-680mg per day
  • Magnesium 400mg per day
  • Chromium-100mcg 2x a day
  • Molybdenum 125mcg 3x a day
  • Zinc-25mg twice a day
  • Selenium-25mcg 1x a day
  • EFAs-FortiFlax 1 tablespoon per day
  • Grapefruit Seed Extract- 1/2 tablet 2x a day
  • Milk Thistle- 1/4 capsule 4x a day
  • Adrenal Cortex-1/4 of 250mg cap with breakfast
  • Melatonin-500mcg 1 hour before bed

We were dosing supplements four times per day and hiding most of them in food or juice because he could not take any capsules and refused most chewables other than gummi’s. I did add echinacea gummi’s when we started chelation because my son got runny noses and low-grade fevers in the very early stages of chelation when his suppressed immune system began working. This resolved fairly early on. These were not the only supplements my son used during our journey, just what he was on in the beginning. There were other things that were added here or there where needs came up like taurine, Immuno Aid, CLO, calcium with D, vitamin D, vitamin K, theanine, inositol…etc. These were used only as long as they were beneficial.

So what supplements does he take today?

  • MB12-1,000mcg per day
  • calcium/magnesium-1000mg/500mg 1x per day
  • a probiotic given only when needed if presenting with gas or constipation
  • CLO with A, D, E. However he’s been off these for weeks now.

When he is on rounds he gets vitamin C, magnesium, vitamin E and a bit of zinc as per the recommendations but he has reached a point in chelation where he does not required these daily. I do supplement in times of illness or if there are symptoms of deficiency for any nutrient.  We do add vitamin D in the winter, since most everyone in our family is deficient in this year round and we have had labs in the past that justify this.

He had not has symptoms of PICA off zinc in several years so this is no longer given daily at this point in chelation. He has been off of adrenal cortex extract for nearly a year now without any occurrence of adrenal symptoms.

I know that most parents hope there will be a day when they don’t have to give any supplements at all but I think in today’s toxic world with the lower nutrient dense foods that a multivitamin/mineral product might be something we all have to continue as a proactive means of covering those gaps.

I hope that some will find this motivating to see that the supplements requirements do gradually decrease. It took several years but eventually he began to need less and less.  At times it seemed like the stuff he was refusing to take, were the things he did fine without. So we slowly scaled back as time went on and he was less toxic and functioning better. In those early years if we missed his supplements you’d see regression in behavior or mood which were confirmation that he needed them. It was when we didn’t see any regressive behavior off of something that we knew it wasn’t really needed anymore.

Looking back at our supplement lists for those early years I recall how much work it was but how helpful it was.

The most promising thing here is that nothing happens to my son if he doesn’t take any vitamins. There are no regression, no re-appearance of autism symptoms, no worsening of any kind.

I’ve beaten ALA-update

MP900433086I started round 114 at 150 mg of alpha lipoic acid.

I expected to have symptoms, headaches or something because my past history with chelation has been rough, but this past year or so, it has suddenly become a lot easier.

The only part I struggle with is not getting enough sleep. If only I could just roll over and swallow a pill I might be back to sleep faster but I’m also chelating a child at the same time. That means I have to go to the kitchen, get things mixed up and take them to the sleeping child, along with water to drink. It only takes a few minutes but for some reason, walking around the house gets the body moving and it’s hard to get back to sleep sometimes. It is a lot better than it was in the early years of chelation when I simply couldn’t get back to sleep for hours. It takes me 10 minutes or so, sometimes a bit longer and you never really feel like you’re getting deep sleep anyway.

This round I did alright with the night wakings the first night but it was the final night at 3 hour dosing that is hardest. In any case it’s just something I’ve had to accept about doing rounds. If you want the mercury out….you’re going to lose some sleep!

I’m tolerating a lot of ALA without ill effect and I honestly never thought I’d see that day.I remember when 5mg gave me terrible headaches.

The only thing I noticed on this particular round was that it felt like my thyroid meds were wearing off earlier than usual the first day of the round. I take NatureThroid 3 times a day because it works better for me at keeping hypothyroid symptoms away later in the day. Normally my dose is fine so I can’t quite explain why or how chelation seems to interfere with this, but it just does. I’ve talked with other adults who felt “more hypo” on rounds too.

Thankfully it went away and I did not have it the entire round or post round.

Aside from the sleep disturbances, I can’t complain.

I expected to be wiped out post round, but I wasn’t. So there is hope for all those just starting out that are finding chelation hard and not tolerating very low doses. You will, it’s just going to be one step or round at a time!

Chelating Adults-I’ve beaten ALA