Tribute to Andy Cutler…..

Andrew Hall Cutler, PhD, PE, 1956-July 29, 2017

This is going to be the hardest post I’ve ever had to write. My heart is heavy, I am in shock. I am deeply profoundly… sad. It feels like the air has been sucked out of the world.  We have lost a very dear man, a hero, a true warrior in the autism and mercury poisoning community.

We lost the man who saved my son from autism! The man who led the charge in safe chelation. The man who save ME from mercury poisoning.

I feel as part of Andy’s legacy I need to talk about the man I knew.

Andrew Hall Cutler, PhD, or as we fondly call him, Andy, the well-educated Princeton man who knew so much about so many things. He was the man behind the frequent dose chelation movement. Heck, he invented it!! That’s why it’s called ACC or Andy Cutler chelation. He was mercury poisoned himself by amalgam fillings and found that mainstream chelation was getting it all wrong. It was making people worse.  Rather than accept that, he led the charge to develop a safe protocol. He chelated himself safely and went on to teach the rest of the world.

Without Andy, I would still be very sick and I would not be sitting here writing this post today. Let me tell you about the man I knew.

I began my journey on the Autism-Mercury Yahoo group in 2006. This is where I met him years ago.  Andy interpreted my kid’s hair tests for me….for free. He did that for tons of people all the time. Andy answered thousands of questions through email, online groups, by phone…….every day, all week, all year. He never stopped helping random nameless strangers all over the world asking for his help. I used to try to imagine what his inbox looked like when he logged in…because I know mine was full. His must have been massive. Somehow he still replied.

He was there with his knowledge when we encountered some tremendous struggles with my son’s health that didn’t even have anything to do with mercury or autism.  I have years of emails from him and ya know what? He never once asked me for anything in return. That was Andy.

He knew there were millions of us lurking out here in the online world suffering…terribly, from mercury poisoning and his mission was to get them the information they needed to get their health back

I had the unique gift to be more than just a mercury poisoned mom or parent of an autistic kid. Andy and I were forum gurus, and business colleagues. We were in the trenches fighting the same war.  Without him, neither of my books would exist and all those children that are healing today because of Fight Autism and Win, would not be.

That is an epic rippled effect. A huge legacy. The number of lives he’s touched is innumerable.

When I was writing my chelation books, Andy was there. Encouraging me, giving his suggestions and his approval. In fact one of our last Facebook messages was him encouraging to me to write another book. He felt that Tressie and I worked well together, we wrote well together, and he wanted us to write another book. It was his words that encouraged me. Here he is this published PhD scholar and he’s telling me “Hey, you’re good at this, write more!”.

Andy was truly one of a kind. He was something special. He had a way of handling people to motivate them into doing something. He moved millions into doing something about their mercury poisoning. How many people have that kind of oomph!

Andy was in essence…a force beyond comprehension.  Andy was brilliant.  He never stopped amazing me with the plethora of things he knew.

He was even there as a mentor and advisor in all things business and authorship.

He and I had this ongoing thing of back and forth emails about copyright infringements. He’d find one for my books and tell me. I’d find one on his books and tell him. He always thanked me.  I didn’t have to do it and he knew that….he appreciated it.  Andy took me under his wing as an author and helped me navigate life as an author. There were so many new things to deal with when you go from forum parent or moderator to a published author. Andy showed me those ropes. Again, never asking me for anything in return.

Beyond our business relationship as fellow authors and entrepreneurs….

I can’t begin to say how I feel about him in terms of my children. Without Andy, I can’t imagine where my son would have ended up. Not just my son but looking at my healthy successful adult daughter today…..that’s all because of Andy.

I truly owed him my life. I could never repay him for these gifts he gave me and the entire mercury community. I hope his family knows how much we all appreciated him.

Exchanging holiday cards, book orders, late night email discussions about all sorts of things…I’m going to miss those things. So many nights over the last 10 years of firing off a late night email, “Hey Andy, I got a questions about….?”  I always sent it under the assumption that he didn’t have to answer it and if he did, it might be a few days or a week.  Five minutes later I had an answer in my inbox. That was Andy

We’d go back and forth discussing this or that. Many times talking about things that had no relation to mercury at all.

For life of me I don’t know how he juggled it all but he didn’t know I juggled it all either. He told me he had the greatest respect for a mom like me that juggled not only a special needs child, but homeschooling and still managing my book sales, and the forums. I was still helping others…when I was so tired and had so little left to give. He recognized that when few people did.

I loved his perspective and I could always count on him to analyze something fairly. If I were upset about a situation, he helped me take the emotional response out of it and look at it more objectively. He was perspective for many of us. He was our leader, our guide, our light at the end of the tunnel. He was more than just some guy online with a chelation protocol. He was a pillar and founder of this movement.

He was very good at resisting the rumor mills, the conspiracy theories, or other modalities that crop up in the mercury online community. He was grounded in reality. He grounded many of us in it as well by pulling us back when mercury was pushing one into that mad hatter’s world.

It’s hard to write this because this is a loss that can’t be computed. You can’t replace Andy and you wouldn’t want to try. He was one of a kind.  I think it’s important to remember that he may be gone but a little bit of him is with each of us. The way he mentored so many of us, taught us what he knew, left us with his writings/books. He has left us a wonderful gift of his work and his knowledge.

His work and his contributions will continue through all of us. This torch will be carried by those of us who knew him and worked alongside Andy doing what he did. We are his Army. We will not stop his mission, but we will carry it forth.

We will continue to teach others how to do safe chelation. We will help them get their health back like he helped so many of us. We will continue to honor him and share his legacy.

From my family to Andy’s family, you have our deepest condolences and our gratitude for sharing this beloved man with us. He spent a lot of time online with all of us and that must have been a sacrifice for you. We are truly indebted and grateful.

I’m going to miss Andy….

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Good things do happen…..

Since this road is so long and often seems to be never-ending I thought I’d post some of the good things that have been happening recently in hopes it will inspire those feeling discouraged.  We recently returned from a trip to visit some immediate family that see’s my son a few times a year.  It has been a year since we have traveled to see them and in the past travel was often filled with frustration, sensory overload and meltdowns over situations which required flexibility. I am sure most of you know exactly what I’m talking about.

If we got lost or had trouble finding a place to use the restroom, or if plans changed as they often do from moment to moment on a trip, we could always expect him to be upset.

Not this year.

This time there was no evidence of an ASD child on a trip. He did not complain about the length of the car ride but was happy to amused himself looking out the window or listening to music. He was not bothered by the sleeping arrangements, the disruption in schedule or the change in food.  Everything was totally out of the normal schedule for him and he didn’t mind at all.

The proof in the pudding was the comment “Wow, he isn’t getting upset by that stuff anymore. He’s so different from last time you came to visit.”.

When we got home, he had a doctor’s appointment with a doctor that has not seen him in a little over two years.  Halfway through this visit she turns to me mid conversation with my son and says “Wow, I don’t see any of the autism symptoms anymore, he’s so much better than last time I saw him”.   And I responded with “yes, I agree. I don’t see it either” She smiled and said “this is wonderful he’s doing so well”.

I hope she puts that in the report from our visit!

Nothing more confirmatory than a doctor reporting that they don’t see the autism symptoms you’re son had 2 years ago.

As you progress, supplements decrease

Packing Supplements

Back in the early days Copyright The Edge of Autism 2010

I was looking back in our recovery journal and I had kept yearly lists of the supplements my children were taking at each year during our chelation journey.  I think it demonstrates progress in regaining health when you look at the list of supplements we need today.

The point being that as you get the toxic metals out, the body heals and works better. So you don’ t need so many supplements anymore.

This post is in no way indicative that anyone needs to take all of these or should take them all. This was the protocol as it was in 2006. Supplements were given differently than they are today, although all of them has a use in dealing with mercury poisoning.  Today the recommendation for children is far less than this but some of these have utility in treating the gut, adrenals, etc.

This was his supplement regimen at age 3 1/2 years.

  • Multivitamin/Mineral for ASD- 1 tsp per day
  • Probiotic-1-2 capsules at bedtime
  • Vitamin A-8,000 IU 1x per day
  • Vitamin E-400 IU 1x per day
  • Vitamin C-1800mg per day divided into 4 doses
  • B Complex-15mg 3x a day
  • Calcium-680mg per day
  • Magnesium 400mg per day
  • Chromium-100mcg 2x a day
  • Molybdenum 125mcg 3x a day
  • Zinc-25mg twice a day
  • Selenium-25mcg 1x a day
  • EFAs-FortiFlax 1 tablespoon per day
  • Grapefruit Seed Extract- 1/2 tablet 2x a day
  • Milk Thistle- 1/4 capsule 4x a day
  • Adrenal Cortex-1/4 of 250mg cap with breakfast
  • Melatonin-500mcg 1 hour before bed

We were dosing supplements four times per day and hiding most of them in food or juice because he could not take any capsules and refused most chewables other than gummi’s. I did add echinacea gummi’s when we started chelation because my son got runny noses and low-grade fevers in the very early stages of chelation when his suppressed immune system began working. This resolved fairly early on. These were not the only supplements my son used during our journey, just what he was on in the beginning. There were other things that were added here or there where needs came up like taurine, Immuno Aid, CLO, calcium with D, vitamin D, vitamin K, theanine, inositol…etc. These were used only as long as they were beneficial.

So what supplements does he take today?

  • MB12-1,000mcg per day
  • calcium/magnesium-1000mg/500mg 1x per day
  • a probiotic given only when needed if presenting with gas or constipation
  • CLO with A, D, E. However he’s been off these for weeks now.

When he is on rounds he gets vitamin C, magnesium, vitamin E and a bit of zinc as per the recommendations but he has reached a point in chelation where he does not required these daily. I do supplement in times of illness or if there are symptoms of deficiency for any nutrient.  We do add vitamin D in the winter, since most everyone in our family is deficient in this year round and we have had labs in the past that justify this.

He had not has symptoms of PICA off zinc in several years so this is no longer given daily at this point in chelation. He has been off of adrenal cortex extract for nearly a year now without any occurrence of adrenal symptoms.

I know that most parents hope there will be a day when they don’t have to give any supplements at all but I think in today’s toxic world with the lower nutrient dense foods that a multivitamin/mineral product might be something we all have to continue as a proactive means of covering those gaps.

I hope that some will find this motivating to see that the supplements requirements do gradually decrease. It took several years but eventually he began to need less and less.  At times it seemed like the stuff he was refusing to take, were the things he did fine without. So we slowly scaled back as time went on and he was less toxic and functioning better. In those early years if we missed his supplements you’d see regression in behavior or mood which were confirmation that he needed them. It was when we didn’t see any regressive behavior off of something that we knew it wasn’t really needed anymore.

Looking back at our supplement lists for those early years I recall how much work it was but how helpful it was.

The most promising thing here is that nothing happens to my son if he doesn’t take any vitamins. There are no regression, no re-appearance of autism symptoms, no worsening of any kind.