Sensory Again

I think I might have figured out the backsliding with sensory.  I hadn’t realize it but we had let him have him a gluten infraction several times in the past few weeks. So what I’m doing now is “proving” my theory by adhering strictly to the diet, no exceptions. I’m going to see if we see the sensory settle back down. If so, that would confirm my suspicions.

This would also implicate a gut connection. Joy….I’m struggling at healing my own gut and while I’ve made some progress through lots of webinars and adding things in, I would have to revisit the dreaded digestive enzymes for him if that is also the case with the gluten.

Anyway, for those following our sensory journey I wanted to tell you what has transpired since my last post. I can’t really be sure about gluten’s role in his sensory. He insists he doesn’t notice a difference.

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Sensory Is Gone Again, it’s not gluten

So now I’m puzzled because the symptoms went away several days after they appeared

Olive Garden 2012

Olive Garden 2012

and I thought it was because we continued the gluten-free diet. But now I’m not so sure.

We had to attend a funeral this past week which was followed by dinner put on for the family and friends. We had been out all day with the funeral proceedings and I had brought my son some snacks. We already discussed that there probably wouldn’t be anything we could eat at the dinner.

Well, despite my best efforts by the time we had arrived at the dinner, it was 1pm and my son was starving. He ate breakfast at 9am but normally he hast eaten lunch by now. They didn’t bring out any food until after 2pm which aggravated the situation. When they did he decided that he was starving and there was nothing I could say to convince he shouldn’t eat any gluten.

He ate a large plate of pasta and sauce. I stuck with the vegetables and fruit that should have been safe. I encouraged him to try to avoid it as I was doing. Which turned out not to matter because I got sick anyway. I might as well have eaten the pasta!

Within 20 minutes I could feel the nausea and the brain fog so I took some activated charcoal which I carry in my purse in case this happens. My son happily gobbled up what I feared would be a nightmare for him later on.

I waited anxious the following worrying the sensory would come back, Each day we checked to see if his sensory reappeared but it’s been a week, and it hasn’t.

I really don’t know what to make of that. I mean I am super happy it didn’t cause a flare up but it leaves with me more questions.

Would it return if he ate gluten regularly? Why did it return after that one infraction but not this one? What else could have triggered it that time he ate the fries that is also in gluten foods? I can’t find a common ingredient that is in all the gluten foods we removed that would also be in fries. It’s not adding up.

I am reluctant to take him off the diet because he’s eating so much better on it. I fear that if he were to eat gluten daily, then it might bring back the sensory, but then again I’m just not sure yet.

I hope in the next few months I will have more answers but for now we are just glad to be sensory free and have survived a major gluten challenge!

Sensory Regression, possible gluten infraction

I reported that on January 27th my son finally overcame his sensory symptoms to paper.

Well that was a good rid while it lasted!!

I’m not sure what happened and I’m not happy to report that today it returned and he noticed it when it was time for his copywork/printing worksheet.

While this is a bummer, I guess it will help me sort out what actually made it go away since I’m not sure what was causing it to begin with.

This is our progression of interventions that led up to curing it:

  • Flower essence: Been on since Oct. 29, 2014 and didn’t have this gain until after the round done on January 29th and gluten-free diet.
  • chelaton round: January 19th
  • gluten-free diet started: January 16th.

Normally we don’t start more than one thing at a time but rounds haven’t done anything for sensory since 2009. So those are really not a new intervention. Neither are the drops he’s been taking for months. I wasn’t planning for my son to be gluten-free…that was his idea. But that was really the only new thing we had done that I could attribute to such a dramatic change.

So that has me thinking did my son get gluten contamination in the past few days?

I wasn’t sure because I make almost all of his food at home but he did have grilled chicken at a place we know is gluten-free and we have eaten there many times without incident.

Since he doesn’t seem to have any symptoms when eating gluten aside from sensory disturbances, it’s not easy to tell if he’s gotten something accidentally when eating away from home. Where as I will know in 20 minutes if I ate something with gluten in it. I will feel like vomiting, my head will hurt and I will feel just terrible.

Well when hubby got home from work tonight I was talking to him about our setback and he reminded me of the french fries my son had on Saturday night that may have been contaminated. We have not bought them in a while and I think that’s where he would have been glutenized.  I had completely forgotten about the fries!! Yikes!

We won’t be eating those anytime soon!

If a gluten infraction caused the setback, then it should fix itself by avoiding any further gluten contamination. I will report back once I have confirmation!