Antivirals and other thoughts

We have slowly worked our way up with the antiviral doses so that we are now at 4 capsules of Virastop and three capsules of Olive Leaf per day. In addition we also provide immune support as vitamin A, D, zinc, Immune Punch, and Transfer Factor.

English: Olive tree leaves, front and back sid...

English: Olive tree leaves (Photo credit: Wikipedia)

Each time we raise we add one capsules of either Virastop or Olive Leaf and wait to see what happens. Generally what we are seeing is that he becomes irritable, defiant and moody for a day or so when the dose has been raised. This passes within 24-36 hours.

What I don’t see are any gains at this point. I thought we had seen something when we first started but it’s gone or it was simply a coincidence. We are hoping something may change for him in regards to his sensory symptoms.

Initially he had made small improvements with chelation but we don’t see much change in sensory symptoms lately with chelation. We have completed 121 rounds and his last hair test in April revealed he was dumping a very high level of cadmium.

I know he isn’t done with chelation because he feels better on it and his behavior and energy levels are usually better. He also still experiences irritability post round. Am I convinced the metals are causing his sensory dysfunction? Well, I don’t really know at this point. Originally I had thought so for the first few years after having read studies and research linking aluminum and Lead to tactile defensiveness and sensory disturbances. As I see those levels declining on the hair test, this leaves the questions of what exactly is behind his significant sensory issues?

I hate to put all my eggs in any one basket but it seems that anti-virals are one of the final things we hadn’t done, so we are now. It will help prevent any future immune dysfunction if we do address viruses and bacteria anyway. I don’t know if it will reduce or cure his sensory symptoms.

We have been on a long road that is financially and emotionally draining and it has been worth it. We have so much farther to go. I will probably faint the day I get a normal hair test for him.

I remember five years ago when he was 3 1/2 years old and I had gotten his first hair test. I still recall that terrible feeling of panic and that huge pit that developed in my stomach. I haven’t been able to fully exhale since. I recall frantically posting the results on the forum for interpretation and Dr. Cutler telling me, “Just chelate him for 3 years to remove all those metals”. I had hope.

I did chelate for three years but we were not able to get 52 rounds per year. We are still chelating and it’s still helping him. But every week when it comes time to mix up the chelators for his round, I am reminded that this is taking a lot longer than I thought it would. I can’t just quit or give up. You don’t quit your children.

So tonight I will spend my evening playing with chelator powder dividing up doses and preparing myself not to sleep through the night for a few days again. Why? Because it makes my son feel better. I know my son will get better because he has already come so far. I can’t image how he would have been if I had not listened to Dr. Cutler and if I had continued to vaccinate, not reduced his metal exposure, and not chelated.

When my son is in a room of children with Autism or Asperger’s it becomes very obvious that he is functioning far above them. You can tell which children have had biomedical intervention and which have not. He shines in speech/social skills class because he understands concepts and social rules better than his Asperger peers. If you saw him on a playground, you would never know he had autism. If you talk to him for 20 minutes you may find his conversations are somewhat one-sided or that he goes on about his favorite things too long, but his differences are subtle. I attribute this to removing his metals because we have done little else.

My son never had ABA therapy or any of the other well-known Autism therapies. (RDI, HBOT, DAN doc, GF/CF, MB12 etc)

It’s very important parents know that this journey  requires perseverance. Determination and a lot of patience. You have to focus on the big picture and long-term.

Antiviral Times….hi ho, here we go!

After having done so many rounds we still have some residual issues to address. We’ve gotten this year’s hair test back and he’s dumping tons of cadmium. But a major issue we’ve had consecutively for the past 3 or 4 years is a sensory integration issues.

He has many symptoms of sensory that involve selected clothing choices, food choices, avoiding odors, noises, and tactile defensiveness to certain items. He avoids paper, wood, pencils, napkins, toilet paper, tissues, and some kinds of foam or felt. There are probably a few other things I’ve forgotten.

As you can image our lives and his are modified by these sensitivities, sometimes greatly. Where he won’t wear socks in the middle of winter. Where he can’t use paper to do his school work. He manages quite well for a little person whose world is full of sensory assaults, but I’d like for him to be more comfortable.

In the past we had attempted anti-virals and usually had to abandon them due the side effects they created. We attempted the high dose Vitamin A protocol a few months ago, and we never made it above 25,000 IU of Vitamin A per day.  That wasn’t really “high dose” but it did create irritability, moodiness, defiance and a really difficult kid.

We tried to stick that out because it should go away, but after 2 1/2 weeks of a completely unmanageable child and no improvements, I went back to his normal daily dose of Vitamin A. We continued to do our rounds while I thought some more about how to go after the viruses.

I know he has a viral problem because he’s very normal acting when he has a fever.

And of course his initial negative reactions to anti-virals. This time we chose to start with olive leaf and Virastop enzymes. In addition I used some Transfer Factor and Elderberry syrup as immune support. The first two weeks or so he was irritable, and tired and a handful to deal with. But it began to subside, and then we began to slowly increase his doses.

We aren’t very high yet, but at just 2 caps of olive leaf and 2 caps of Virastop per day, I caught him using paper the other day. I asked him how his paper sensory was and he said that it wasn’t gone but it was different. While he still didn’t really care for the feel of the paper he could tolerate writing on it just a little bit. He said his sensory was a little different, not gone, but a teeny bit better.

In the past I’ve seen tiny glimpses of sensory improvement with rounds but it usually comes back off rounds. Over the years his tactile has reduced with just rounds so that he is able to wear clothing now. But his nervous system still seems disrupted by something.

The hopping, bouncing and tactile issues linger. I am trying not to get too excited just yet over this tiny change, but its hard when you’ve tried so many other things and he’s still not where he needs to be. It’s easy to fit in when you’re 3 and hopping but it’s very obvious at his age when he’s in a group of peers. At this point we’ll take any improvements we get.

I plan to continue to raise the anti-virals to a reasonable dose of a few capsules per day and hold that for 3 months. See what happens. I may change anti-virals at that point. We do have to treat for Candida while on the anti-virals, but he’s done very well and the yeast has been very minimal. Initially it kicked up and he began asking for donuts (that’s our clue) so I put him back on a sprinkle of GSE a day. And that’s taken care of it. I’m just thrilled that he took a sheet of paper and was writing codes on it for his game by himself….without anyone making him use it!!

This is stark improvement from our first attempt at antivirals which was obviously too soon. Sometimes you need enough metals out that the immune system is working and can actually help in the process of killing viruses. Not that you really “kill” them but more like control them.