After a long and arduous January we were finally able to do round 177 for my son, and 117 for myself. I had intended to do it in January but between a nasty cold he caught and then other things, it just didn’t happen. So this made a 6 week break for us since our last round.
We aim for 1 round per month but sometimes we do take longer breaks and then “test” the waters by doing a round to see if there is a response. I’ve also been doing antivirals on myself which has been a challenge. We did get a response this round.
What we saw this round was different from the past year of rounds in which we really had no side effects. This round we both felt a bit irritable on day one. I had adrenal stress for day one and two. My son also reported tactile defensiveness sensitivity which he hasn’t had in quite some time and certainly not aggravated by a round. We used to see this improve on rounds in the very early days but we reached a point where chelation didn’t seem to affect it either way. So I was very surprised to see it aggravated on this round.
We plan to do a follow-up hair test in the next few months even though they are not useful for diagnosis. At this point it’s for my curiosity to see when he stops meeting the counting rules. It might also give me a glimpse at his thyroid and adrenal status.
I was beginning to think that maybe the end of chelation was near because it did not cause any symptoms good or bad, it really hasn’t for over a year now. I knew we were not done but we have to be getting close considering he doesn’t have any ASD symptoms anymore.
Thankfully the sensory flare disappeared after the round ended. Overall once we were past the first day it was fairly easy. I’m glad the sensory flare was temporary, I was waiting on seats edge to see if it would resolve post round and it did.
The past few weeks my very good sleeping child is not getting to bed before midnight. He says he just “can’t fall asleep”. I had to go through things to see what has changed? Did we add a new supplement? No. Did he we change his foods? Not really. Is he sleeping late? Sometimes but not enough to explain why he isn’t tired.
Something we overlooked was his grounding mat. Was it still working? I had checked it to make sure it was still plugged in. And it was, but this time I had hubby test the wiring with a multi-meter to make sure it was actually grounded. It was not.
Our grounding stake and wiring has stopped working because it is outside, and the weather does what it does after several years. So we replaced the wiring to his mat and tested it to make sure it is now grounded.
Having a child with autism often makes life busier than it might have been otherwise. We have to manage things that most parents don’t. Like supplements, dietary modifications, therapy and also somehow get household chores done too. It isn’t easy but most of us learn to juggle this rather well after some practice.
But what if there were some tools out there to make this process easier? Well certainly that would be fantastic.
My co-author Tressie came up with this excellent idea to start collecting and creating such a resource to make our biomed parents lives easier. And thus was born the Autism Organized website. We get so many questions from parents about managing all the aspects of biomedical therapy and their every day lives. And finally, there are some tools to help.
From our recovery organizer, household chore list, menu planning, dietary information right on over to fun activities you can do with your kids…its truly an awesome collection of resources.