Methylfolate experiment

After getting the MTHFR testing back we began methylfolate and P5P. He had already been on methylcobalmin for months which was helpful. Initially he complained that after he took his Methylfolate/P5P supplement it always made him have to pee. I haven’t heard this complaint in a while so I think that stopped.

However, what we have noticed of lately, and it’s taken me some time to figure this out…is he is irritable an awful lot of the time. This is a fairly recent problem and we were attributing it to puberty initially but as I began thinking….even puberty isn’t this irritable!

Just not himself at all, argumentative, and didn’t want to do anything….even things he normally liked. He was obviously feeling bad and I couldn’t figure out why.

It dawned me on two days ago…what about the methylation supplements?!?!?

I did not respond well to methylfolate but he seemed just fine when we started it. So I assumed we were go to continue giving it to him. That was some 9 months ago but what if what’s good then isn’t good now?

I began searching the web and found an article by Ben Lynch describing the problems some people have with methylfolate. He talks about how someone could do well initially and then it can all fall apart.

So on a hunch I stopped giving his morning 800 mcg methyfolate supplement, just to see.

Guess what? He is back to himself!!

He is still taking his MB12 because he was on that prior to the methylfolate and did well on it for over a year.

His CBC is indicating he is no B12 anemic anymore…hmm..perhaps he doesn’t need as much folate?

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The results of our LDN and antivirals

We had our follow-up with the doctor today to go over labs and touch base on progress after changes made in March following his lab results. This time we checked his thyroid levels, CBC with Diff, DHEA, Ferritin, Insulin, Comp Metabolic 14 Panel, thyroid antibodies.

Just to refresh what’s been going on this past few months we have been treating him for a viral and low immune system issue, hypothyroidism, anemia and nutritional deficiencies.

We were very pleased with the results because he is making progress! So that long list of antivirals and immune support he’s been taking daily since March has worked. His CBC with Diff is normal for the first time since 2011. His thyroid antibodies have come down to a normal range. Would be nice to see them even lower but from a diagnostic standpoint he no longer has “Hashimoto’s autoimmune hypothyroid”.

He is however, still hypothyroid on 1/2 grain of NatureThroid so we will be working to increase his dose slowly and repeating labs in a few months.

Ferritin came up nicely to 53 so we can cut back and phase out his iron supplement. Hopefully, he holds the levels, but if not, we might need to start it again.

DHEA is normal for his age now and ironically we never supplemented this. It isn’t really safe to use in children prior to the completion of puberty. All we did do was support his adrenal glands with adrenal cortex glandular, and give him thyroid hormone…that alone reduces the stress on the adrenal glands so they can make more DHEA!

I’m excited that our remaining supplement list is much lower now.

I also wanted to share that we have seen a significant reduction in anxiety and have been

Compounded Troches (Gummies) Image Credit: http://www.betterlivingmedical.com

able to reduce his theanine to once a day since raising thyroid meds. It is so amazing how adrenal symptoms are so often driven by low thyroid hormones and so easily corrected with a little thyroid hormone. We do need to finish out his Low dose naltrexone therapy for another 2 months though but he has no symptoms from taking it and doesn’t mind the gummies. (compounding pharmacies are a blessing, not on my wallet but eh..I’ll pick my battles!

I still have him on Citicholine for other reasons and I will continue reading about MTHFR because it my next post I talk about the problem we ran into with methylfolate.

Now we just hope these improvements stick off of the antivirals.

How we beat colds

Well we’ve fallen behind the past few weeks with chelation due to illness. My child caught a pretty bad sinus cold that took a week to go away. He somehow caught it despite being on all those antivirals, LDN, and immune support he was already on. I can’t imagine how much worse it would have been if he were not on all of that. At first I thought perhaps it was just viruses coming out from the treatment but guess who else caught it?

Yep, that’s right, me but I was able to kick it out in 3 days with high dose vitamin C, Echinacea tincture, elderberry syrup and gargling with apple cider vinegar diluted in water. Dad got it too so definitely some thing my son brought home.

I also make this wicked and I mean wicked decongestant from raw honey, apple cider vinegar, ginger and cayenne pepper. It is not for the faint of heart but it will help you clear out congestion fairly quickly with no side effects.  One teaspoon and in a few minutes your nose is running!

In addition I cut a clove of garlic into pieces and swallow them whole at the first sign of a cold. Since my child won’t take outright swallow garlic pieces…I use band-aids to put one piece on the bottom of each foot and then we put his socks on. I also make a point to  cook with as much raw fresh garlic as I can or add it to his food.

We also drink tea since it’s very soothing to sore throats. I have found over the years that Throat Coat never fails me. I alternate that with a cup of hot water with a piece of fresh peeled ginger in it.

We also did use homeopathy also. In the early stages an individual remedy based entirely on that person’s symptoms called a “constitutional”. Six days later we needed Sinusalia for the sinus congestion that was just not draining for my son.  A home homeopathic remedy book for families is often helpful to have on hand for this purpose.

The main struggle was sleep for him. He found it hard to stay asleep with a headache and cough. He would cough himself awake off an on all night. So needless to say we didn’t get a lot done that week at all.

I ran a steam vaporizer in his room. We do that all winter anyway since he’s prone to being bothered by waking up “dry” as he calls it. I learned a few years when he had a cold and had a lingering cough for weeks after, that a moist vaporizer was the trick. Dry indoor winter air makes you prone to colds and once we started adding humidity in his room he catches far fewer colds. This is actually his first cold this year. Hot baths or showers are also helpful to alleviate congestion.

I use Olba’s Cough Syrup whenever he is bothered by coughing or a sore throat. I love this product because it actually tastes good, helps and it is drug free. They also make aromatherapy, therapeutic bath gel, lozenges etc., that all help with congestion.

What I find the hardest challenge for parents trying to switch from the mainstream modality of giving Tylenol and Robitussin is not trusting that nature works.  Drugs suppress the symptoms but this isn’t letting the body attack the viral infection and heal it and often suppress comes out as another illness or symptoms later on. We prefer to help the body do what it’s designed to do.  Which is mount an attack! Congestion is how your body gets the infection out of your airways. Coughing is how the body keeps the congestion moving so you don’t get pneumonia or bronchitis. Fever is how the body kills viruses and bacteria. They cannot live in a host that isn’t 98.6 degrees so your body turns up the heat!

While having a cold is certainly miserable for all involved….patience is our virtue as the body is working on it. We can help the body along.

So now you know how we attack illness in our home. I hope it gives everyone inspiration for ways you can manage and help the body during illness.