Before Biomed

Before biomedical my son was a temperamental child who did not like people around him. We have a photo of his second birthday, sitting in his high chair to blow out his candles. He would not look at anyone and he looked like he was going to cry.

These early years were very trying for our family because we didn’t know what was wrong. He was irritable most of the time and preferred to be left alone.

When we recalled our son’s birth and early days of life, I remembered how perfect and calm he was his first few days. Things seemed to change slightly on the day he was to go home.He was taken to the nursery for a “check-up” in order to be cleared to be discharged. The nurse brought him back to me and told me he was all set to go home. However, when she handed him to me he let out this ear-piercing scream. It’s not something you forget hearing your newborn scream like that. I asked the nurse what was wrong, what did they do to him in the nursery? She said nervously replied “nothing, maybe his diaper is pinching him”.

We unwrapped him and did not find any explanation for the scream. I could sense her anxiousness and concern because she insisted on staying with us until “she was sure he alright”. To this day I can only speculate that he might have been given a birth Hep B vaccine that day because this sort of screaming is associated with vaccine reactions. I am waiting on medical records to clarify if this might have been the issue.

Things really took a nose dive after his 2 month vaccines. He screamed and cried all night long. He would not sleep unless I rocked him constantly. If I put him down, the screaming would persist. Prior to this set of vaccines he was sleeping 4-5 hours between feedings and seemed to be happy and healthy.

After the 4 month vaccines…more crying and screaming and not sleeping.

We did see delays in his development, like rolling over, sitting up, crawling. These happened but late or not the way most infants do them. My son dragged himself around the house using his arms but did not use his legs to crawl. Other skills he never had. He had trouble nursing, refused solid foods and was very clingy and fearful.

Things finally went over the edge following the MMR/Varicella at 15 months, and DTaP at 18 months. That’s when eye contact went. This was when I began to suspect there was a serious problem. My son simply didn’t make eye contact anymore.

At age three he had the list of symptoms below. These disappeared with biomedical interventions. We started out by removing milk and dairy from his diet. We put him on a vitamins, minerals, fish oil and probiotics. He was on the Feingold diet for three years. The diet and chelation helped him tolerate food infractions without anymore reactions. My son would completely dissolve into a trantruming unreasonable mess who laid on the floor screaming and kicking if he ate Red dye No.40. Today this does nothing to him but we generally avoid it because its unhealthy.

Most of these symptoms were gone by our second year of chelation. My son had great eye contact, didn’t spin or flap anymore. He still jumped but less often. The toe-walking was gone. He could cut, write, color and use the toilet. Matter of fact, the second day into his first round, he woke up and went pee in the toilet by himself. I almost fell out of bed when I heard him urinating in the potty chair! He has continued to make progress with his sensory issues.

We went for evaluation at age 3 because our pediatrician finally began to agree with me that something wasn’t right. My 3-year-old did not engage with her at his check up at all.  I started learning about biomed while we were put on the 3 month waiting list for an early intervention evaluation. Some of my son’s symptoms were gone by the time that evaluation came.

Doctors dragged their feet every year when his follow-up evaluations came. They admitted that my son had many symptoms of PDD/autism and his GAPS/GARS evaluations indicated autism but I was always told they were not willing to put that in writing because he was “very young” and he “could talk”.  They stuck to the sensory processing disorder label. Many children with autism do talk so this was an excuse that would later be revealed.

At the age of 8 a psychologist evaluated my son and diagnosed him with Asperger’s Syndrome (now called Autism Spectrum Disorder). This was after several years of chelation and biomedical. His symptoms were markedly improved from his original symptom set. I later learned that most of the people in my local area who went to the same clinic reported that the clinic would only diagnose severe cases because they were under pressure not to diagnose the less severe kids. The doctor that did finally diagnose him admitted that his case was pretty clear and it was a mystery why the diagnosis was not given earlier.

My son continues to make progress. We joyfully report in May 2016, he saw one of his doctors, whom had not seen him in two years/ She was talking with my son and turns to me and says “wow, this is amazing, I don’t see any Asperger symptoms in him anymore”.  I agreed with her.

Most of the people who knew my son when he was little have remarked over the years at how much different he is, how much better. Those that don’t know our history, can’t tell he had a diagnosis.

The last psychiatrist that evaluated my son in 2011 thought he was “misdiagnosed with Aspergers because he really didn’t any symptoms of it”.

We continue with chelation because his test still meet counting rules for mercury and he still has sensory symptoms in the form of tactile defensiveness. We plan to see this through until his hair test is normal and he no longer responds in any way to chelation rounds.

His original symptoms:

Motor Issues: Jumping and hopping instead of walked. Toe-walking all the time. Rocking on fours as an infant. Jumping all the time. He went through two crib mattresses! He broke his regular bed frame as well. We lost one couch to his jumping. He was always moving/jumping/hopping as means to calm his sensory system. Arm flapping and spinning

Reaction to loud noises: Anytime a loud appliance like the vacuum cleaner or blender were turned on, he would begin to jump and flap his arms and yell. If you turned the appliance off, he would stop jumping and yelling. As many times as you turned it on and off the same behaviors would begin or stop.
Banging: He banged on everything. The floors, walls, and used his toys to bang things. He would rhythmically kick the table while sitting. Kick the car seat while riding. It was like we were always saying “quiet feet please”, or “no banging”. He tried bang his head as a toddler.

Fear: He was very fearful of noise. He would run to me clinging to my side if he heard noises he could not identify in the house. He would ask what it was, and why is was making that noise. He also covered his ears a lot and was terrified of things like fire sirens, fire work displays, anything loud. We could not go to parades. He would flip out if anyone tried to talk to him that wasn’t mom or dad.

He would have a death grip on me when people came to the house, or he would go into his room and throw things in distress until they left.

Sensory: He protested wearing any clothing but his diaper. No matter how much we insisted it was like it was painful for him to have clothes on. As he got older we were able to make him wear certain fabrics so we could leave the house. As soon as we returned home he would rip it all off again. No tags, no zippers, no collars…cotton only. Totally lost it if you try to wash his hair or comb it. No hair cuts, no nail trimming. Screamed in terror if you tried to put a band-aid on him. Would not take any medicine, he would gag and scream and throw it up. It was pure terror for him to think of taking medicine. No painting, play dough or any messy play. He couldn’t stand his hands to be sticky, dirty. When he was 18 months old I gave him play dough and he gagged when I put it in his hand. I have never seen a child do this and I have seen my share of 18 month old’s.

Toileting Issues: He was urine toilet trained at age 2 1/2 and regressed. After this, he was terrified of the toilet. We were not able to toilet train him until after chelation began and he was almost 4.

Auditory: He seemed to have trouble comprehending what we said to him. We had to re-phrase things a lot and say them slowly, using one command at a time. Often he would still get it confused. At times he did not respond to his name. It seemed like he was in “la la land”.

Hyperactivity: He was very hyper, distract-able, could not sit still to do anything.

Eye contact: Lost eye contact after his 16 month vaccinations. If he did look at you, it would be from out of the side of his eyes and for a second at best. This flared up again after his 18month vaccines and he became withdrawn.

Diet: Self limiting diet: only eating about three or four foods prepared a certain way. Other foods made him gag, or he did not like the smell, look or texture. Chronic constipation followed by bouts of diarrhea

Inflexibility: He was very inflexible. Everything had to be predictable or he would melt down. We could not change plans, drive a different route or have guests over.

Face Blindness: He did not pick up on other people’s facial expressions or visual cues for communication. He did not have “humor” or apathy. If you were crying, he would keep playing as if nothing were wrong. He lacked empathy. He would ask things like “why are those kids running and laughing? What are they doing?” I would have to explain that they were playing. And he would say “oh” with a blank look.

Over stimulation: He would get hyper or revved up in a busy place like the grocery store. And run up and down the isles. No impulse control, and did not seem to remember things like the stove is hot

Oral Sensory: He was still mouthing and eating toys and object at 3 years of age.

Social Delays: Had no interest in playing with other children. He looked at them at playgroup as though they were aliens and preferred to play with mom. No pretend play. He did not voom-voom the car or make believe until after chelation began.

Odd behavior: He lined up toys by color and size. He did not stack blocks or build things with them. He would spin the wheels on toys rather than play with them as cars. He would repeat words over and over again for no reason. And repeated phrases over and over that he saw on TV. We call this “scripting”. He would watch the same video over and over for weeks. Obsessed with the heat runs in our house, and would sit in front of them to feel the heat. He could actually hear the thermostat click and know the furnace was going to run. No one else hears this but him. Push buttons on everything over and over frantically. Opening and closing doors and flicking light switches on and off.

Fine Motor: At age 3 he could not write, draw, color or use scissor despite our best effort to help him. He also could not manage utensils to feed himself.

Visual Motor Delay: Trouble following verbal commands, such as finding a toy on the floor. You would have to give a very good description of the item and he still would not see it. Also if you sent him to get something he would not come back.

Odd behavior: He lined up toys by color and size. He did not stack blocks or build things with them. He would spin the wheels on toys rather than play with them as cars. He would repeat words over and over again for no reason. And repeated phrases over and over that he saw on TV. We call this “scripting”. He would watch the same video over and over for weeks. Obsessed with the heat runs in our house, and would sit in front of them to feel the heat. He could actually hear the thermostat click and know the furnace was going to run. No one else hears this but him. Push buttons on everything over and over frantically. Opening and closing doors and flicking light switches on and off.

Echolalia, Headbanging, Biting, Scratching, Hitting, Withdrawn, etc.


**To date we have completed 189 rounds of DMSA/ALA or ALA only and included other therapies like Occupational Therapy, Speech Therapy, Vision Therapy, Homeopathy, Flower essence. We have also done antivirals, antibacterials, immune support, dietary modifications as needed, etc.

Some of our remaining residual issues are endocrine (adrenal) problmes and sensory symptoms which we continue to work on as we remove more heavy metals. You can see the hair test page to see the latest hair test which shows we are finally reducing his metal load.


The Beginning of the Edge

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s